Ehlers-Danlos Symptoms
Boston Walk to Support Marfans/EDS Research
By John Lynds, Times Staff: Just before she turned 3-years-old, Beth Villani’s daughter, Hannah was diagnosed with Ehlers-Danlos Syndrome. “Our daughter was diagnosed in January at just age 2 years and 10 months,” said Villani. “I will be honest and say that hearing that news broke my heart. When the doctor told me we would […]
Video – 5 Tips for Managing Persistent Pain
Learn ways to reduce persistent pain by listening to a physician talk about her personal journey through pain and recovery. Dr. Bluestein says “in my wildest dreams, I never imagined that I would return to the very same clinic I had trained in as a physician … 18 years later … as a patient! […]
Telling My Teammates “I Have Ehlers-Danlos Syndrome”
By KYLE GRABOWSKI @kylegrbwsk NORTHAMPTON — Hannalise Rivera-Lovett jumped to intercept a pass. She was playing in a summer league basketball game at JFK Middle School between her sophomore and junior seasons to stay fresh for the winter. Everything above her knee went one way, everything below went the other. The torque caused a subluxation […]
2017 EDS International Classification: Your Questions Answered
Q & A about new Ehlers-Danlos Classification
High Tryptase Associated with Dysautonomia and POTS
Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. Some people who experience these diverse symptoms have elevated levels of tryptase — a protein in […]
New Zealand EDS Patients told “It’s all in Your Head”
BY: THOMAS HEATON AND DAVID MAIDA . . . . The syndrome causes abnormal collagen synthesis, which means that although the body produces it, the collagen is weaker and causes the joints and its connective tissue to become loose. Auckland-based Dr Fraser Burling, an expert in chronic soft tissue injuries, said […]
“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Free Webinar: “Mast Cell Activation Syndrome in EDS Patients (Part 2)” – Recording Available
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com . . . . TOPIC: “Mast Cell Activation Syndrome in EDS Patients (Part 2)” . . PRESENTER: Anne Maitland, MD, PhD – Director for Comprehensive Allergy & Asthma Care and the new Mast Cell Activation Center of New York Click IMAGE here for a link to […]
Popular Posts
Ehlers-Danlos Syndrome May Increase Susceptibility to Infections
EDS, POTS and MCAS Linked by One Gene Mutation
Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”