Ehlers-Danlos Symptoms

“Every day I wake up is a blessing” … despite Ehlers-Danlos Syndrome

By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]

Free Webinar: “Mast Cell Activation Syndrome in EDS Patients (Part 2)” – Recording Available

Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com  . . . . TOPIC:  “Mast Cell Activation Syndrome in EDS Patients (Part 2)” . . PRESENTER:   Anne Maitland, MD, PhD – Director for Comprehensive Allergy & Asthma Care and the new Mast Cell Activation Center of New York       Click IMAGE here for a link to […]

Free Webinar: “Physical Therapy Protocol for Ehlers-Danlos Syndrome” – Recording Available

Watch the recording of this free webinar.
When you purchase the book through the following link, $1.00 will support EDS Awareness programs.

Ehlers-Danlos – “An Accident Waiting To Happen”

Philip Howard was the 88th person in Britain to be diagnosed with Ehlers-Danlos syndrome (EDS). He has written a book about his fight to overcome adversity. Philip Howard’s new book “An Accident Waiting To Happen” tells of living with a rare condition that leaves him prone to falling over and breaking bones. Ben Blosse reports. […]

Double-jointed? Often in Pain? It Could be Ehlers-Danlos Syndrome!

Ehlers-Danlos Syndrome (EDS) was once thought to be a rare disorder, but EDS experts say its prevalence is under-estimated and its diagnosis is often missed! Learn the signs.   By Abi Jackson _ If you suffer from these ailments, you could have EDS – a rare condition of the joints. Here’s what you need to know. If you don’t know […]

Henry Has Classical Ehlers-Danlos Syndrome

Little Henry and his family are struggling with Classical Ehlers-Danlos Syndrome. It took a year to be diagnosed. Now that the cause of his symptoms has been identified, his parents can better care for him.

Dr. Jan Dommerholt Webinar on “Physical Therapy for Ehlers-Danlos” – Video Recording

 EDS Awareness invites you to watch this FREE webinar recording!   Sponsored by www.bodysupportstore.com   TOPIC:    “Physical Therapy for Ehlers-Danlos”   PRESENTER:   Dr. Jan Dommerholt   About our speaker: Jan Dommerholt, DPT Jan is a recognized expert in the physical therapy diagnosis and treatment of persons with chronic pain syndromes, including EDS. He has lectured at EDNF patient […]

Woman with Ehlers-Danlos Syndrome (EDS) Has Painful Dislocations 10 Times a Day

When Jojo was diagnosed with EDS, she felt relieved! “Finally, I had an answer to why my body is the way it is.” Her EDS went undiagnosed for 24 years! This is not surprising, as our poll indicates more than 50% of EDS patients wait more than 20 years for a proper diagnosis.