Archive for the ‘Ehlers-Danlos Symptoms’ Category
Posted on June 18, 2017
By John Lynds, Times Staff: Just before she turned 3-years-old, Beth Villani’s daughter, Hannah was diagnosed with Ehlers-Danlos Syndrome. “Our daughter was diagnosed in January at just age 2 years and 10 months,” said Villani. “I will be honest and say that hearing that news broke my heart. When the doctor told me we would […]
Posted on May 26, 2017
Learn ways to reduce persistent pain by listening to a physician talk about her personal journey through pain and recovery. Dr. Bluestein says “in my wildest dreams, I never imagined that I would return to the very same clinic I had trained in as a physician … 18 years later … as a patient! […]
Posted on February 25, 2017
By KYLE GRABOWSKI @kylegrbwsk NORTHAMPTON — Hannalise Rivera-Lovett jumped to intercept a pass. She was playing in a summer league basketball game at JFK Middle School between her sophomore and junior seasons to stay fresh for the winter. Everything above her knee went one way, everything below went the other. The torque caused a subluxation […]
Posted on February 18, 2017
Q & A about new Ehlers-Danlos Classification
Posted on October 18, 2016
Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. Some people who experience these diverse symptoms have elevated levels of tryptase — a protein in […]
Posted on August 12, 2016
BY: THOMAS HEATON AND DAVID MAIDA . . . . The syndrome causes abnormal collagen synthesis, which means that although the body produces it, the collagen is weaker and causes the joints and its connective tissue to become loose. Auckland-based Dr Fraser Burling, an expert in chronic soft tissue injuries, said […]
Posted on July 4, 2016
By Richard Salit, Journal Staff Writer. Ellen Lenox Smith’s recurring injuries and ailments were as baffling as they were disabling. Some doctors thought they might even be psychological. Why was she always in such pain? Why did she have difficulty swallowing? Why did she keep tearing cartilage and ligaments in her knees and shoulders? And […]
Posted on April 19, 2016
Watch the recording of this free webinar. Sponsored by www.bodysupportstore.com . . . . TOPIC: “Mast Cell Activation Syndrome in EDS Patients (Part 2)” . . PRESENTER: Anne Maitland, MD, PhD – Director for Comprehensive Allergy & Asthma Care and the new Mast Cell Activation Center of New York Click IMAGE here for a link to […]
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