Ehlers-Danlos Symptoms
Low-Dose Naltrexone: Possible Pain Relief in a Small Package
The following is not intended to be medical advice. If you have questions about low-dose naltrexone, please speak to your doctor. The drug Narcan, or naloxone, has been in the news for the last five to ten years due to its effective use as an opioid-reversal agent. If someone is overdosing, a spray of […]
Research Round-Up, Edition 2
→ BREAKING NEWS: Study finds biomarker that could lead to a blood test for hEDS & HSD ← Welcome back to the Research Round-Up, a summary of medical news you can use. We’ve got a lot of great research for you this month, so giddy up and git going! Yee-haw! If you have an article […]
Book Review of New EDS Book Symptomatic
The Ehlers-Danlos Syndromes (EDS) are complex and multifaceted conditions that have, for decades, challenged both patients and medical professionals alike. Over recent years, several books have been published on EDS. For instance, Dianna Jovin’s Disjointed and Christie Cox’s Holding It All Together, among many others. Recently, Symptomatic joined the list. Edited by EDS experts Dr. […]
Top Ten Reasons EDS SUCKS!
The votes are in! One hundred and sixty-seven (167) of you responded to our survey about the things that SUCK about EDS. What made it into the top spot as the worst of all? Where did your dissatisfactions rank? Scroll down to find out! How we tallied the results: Each respondent received the same 19 […]
A New Way to Get Along with Fatigue: Set Up Your Personal Fatigue Scale
Did you know that fatigue is the second most commonly described symptom of hypermobility, after pain, according to the NHS and Cleveland Clinic websites? It’s something many of us with Ehlers-Danlos syndrome (EDS) share in common. But maybe if we could learn to pick up on the subtle signals sooner, we can learn to better […]
Got the Barometric Blues?
Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]
Spoonie & Chronic Illness Podcasts
Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have shared our favorite books in our special newsletter issue in May for EDS Awareness Month, as well as EDS […]
Podcasts on Ehlers-Danlos Syndrome
With growing awareness about the Ehlers-Danlos syndromes, varying resources in different types of media developed over the last years. Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have […]
