Therapies

Physical Therapy Webinar: “Dry Needling for Ehlers-Danlos Pain”

  Watch this FREE educational video presentation!    TOPIC:  “Dry Needling for EDS Pain Management: Can muscle performance be improved?”   PRESENTER:   Frank Gargano PT, DPT, OCS, CIDN, MCTA, CWT   Sponsored by www.bodysupportstore.com      Click here for the video replay!   Links to resources mentioned in the video presentation: Dry needling therapy can decrease pain, click here. Dry […]

Cleveland Clinic webinar on “POTs, Syncope and Other Autonomic Disorders” held November 12, 2014

Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]

Webinar by Dr. Peter Rowe – Recording available

  EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS.     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording   CLICK HERE for the slides used in this presentation     PRESENTER:   Dr. Peter Rowe is a […]

Chronically in Pain and in Love – POTS and Ehlers-Danlos Syndrome

The diagnosis was bittersweet. It was good to finally have an answer …. Ehlers-Danlos Syndrome! By Emily McComas CHARLESTON, W.Va. — Kyli Wolfson was losing hope. “For most of her life, she had struggled with a lack of energy. She couldn’t keep up with her peers in middle school gym class and tried to work with […]

Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

EDS Awareness Speaker Series – Alberto Friedmann – Recording

  We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]

Doctor Speaker Series

EDSawareness.com is excited to be offering this Doctor Speaker Series to our EDS Membership. We are limited in the number of openings so please dial in early (by telephone only) to attend the program. The sessions will be the 1st and 3rd Wednesdays at 9:00 pm EST. Our speaker for September 18 was Dr. Stephane Treyvaud. Dr. Treyvaud is an adult, […]

Doctor Speaker Series: Dr. Stephane Treyvaud

  We were pleased to have Dr. Stéphane Treyvaud present in our EDS Doctor Speaker Series. His presentation aired on September 18, 2013 at 9:00 pm EST.     Dr. Treyvaud is an adult, and child and adolescent psychiatrist. He is a fellow of the Royal College of Physicians and Surgeons of Canada, of the equivalent college […]