Archive for the ‘Therapies’ Category

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Being Your Own Advocate

Posted on February 22, 2013

Author: Jonathan  Rodis President-Massachusetts  Chapter of the National Marfan Foundation Head-EDS Massachusetts  and New England Support Group “Wow..how many times have you or loved one or a friend been told something totally wrong about your condition from a doctor?  Of course, I know the answer…many, many, many times. The worst imaginable place to hear it […]

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Explaining Disability​ – Part of What Makes Us Disabled

Posted on January 23, 2013

Author: Jonathan  Rodis President-Massachusetts  Chapter of the National Marfan Foundation Head-EDS Massachusetts  and New England Support Group       “I wanted to share with you something I wrote to  help everyone understand what it is like to be disabled, what it is like to  have an invisible disability, what to do if you find […]

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The “Handshake” Mouse for EDSers

Posted on June 1, 2012

An ordinary horizontal mouse requires your forearm to twist away from its natural position. This can create more problems for unstable joints like mine. EDSers do better with a grip that is the same as an ordinary mouse, just turned sideways into a handshake position. I got used to the Handshake Mouse very quickly. This Vertical Mouse […]

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