Therapies

People With Invisible Disabilities, including Ehlers-Danlos, Need More Understanding

NPR radio ran a segment on invisible disabilities to commemorate the 25th anniversary of the Americans with Disabilities Act (ADA).  While progress has been made, much still needs to be done.  Click here for the original broadcast on NPR radio. Join the efforts to spread awareness of ADA on its July 26th anniversary. Resources include this Tool Kit, a project of the ADA […]

“The Feldenkrais Method” Webinar by Cynthia Allen – Video Available

Watch this FREE online learning session!    Cynthia Allen, GCFP, STMI gave a presentation titled “The Feldenkrais Method and other Somatic Approaches to Improve Function and Ease”. It focuses on movement techniques to increase your body awareness and learning how to improve your quality of movement.   Sponsored by www.bodysupportstore.com       Click here for a link to […]

Dr. Mark Lavallee webinar “Exercise is Medicine” – Video Recording

Watch this FREE online learning session! Mark E. Lavallee, M.D presents “Exercise is Medicine – especially for Ehlers-Danlos”. He has EDS, classical type and has lectured at many EDNF conferences.

Roslyn’s Quest for a Service Dog to Assist with Ehlers-Danlos Syndrome

In response to one mother’s request for help, proposed legislation requiring insurance companies to provide coverage for the costs for service dogs will be considered by lawmakers in Hartford, CT.  Roslyn is navigating the process of obtaining a service dog for assistance with her EDS needs. The community is rallying behind her! By Kathleen Schassler, The […]

Dr. Jan Dommerholt Webinar on “Physical Therapy for Ehlers-Danlos” – Video Recording

 EDS Awareness invites you to watch this FREE webinar recording!   Sponsored by www.bodysupportstore.com   TOPIC:    “Physical Therapy for Ehlers-Danlos”   PRESENTER:   Dr. Jan Dommerholt   About our speaker: Jan Dommerholt, DPT Jan is a recognized expert in the physical therapy diagnosis and treatment of persons with chronic pain syndromes, including EDS. He has lectured at EDNF patient […]

Gabrielle’s Personal Battle with Ehlers-Danlos Syndrome

After being diagnosed with Ehlers-Danlos Syndrome, high-school student Gabrielle found comfort with members of the Young Life organization. She found purpose and motivation through her renewed spiritual connection. “Right after I got diagnosed with Ehlers-Danlos Syndrome (EDS) and figured out I could not play volleyball, I truly was devastated. I felt like I was missing out […]

Chronic Pain from Ehlers-Danlos Syndrome Leads to a Drastic Decision

Elisha Morgan’s 8-year struggle with severe foot pain lead to an Ehlers-Danlos diagnosis that changed her life. Her doctors exhausted all treatment options. Now, she considers making a very difficult decision … (Part 1 of 3)

How Yoga Helps Christine Cope with Ehlers-Danlos Pain

Christine has found a method to cope with her Ehlers Danlos Syndrome that works well for her. Practicing gentle yoga has changed the way she thinks and feels about her pain and helps her get back more control over her life.   By Locke Hughes. “Many of us have dealt with a painful injury or illness at some point […]