Community
Hypermobility “Stick Men”
Enjoy the creativity of this EDSer who gets her message across with “stick people” stories, communication cards and signs. At times we need a little humor! Hannah from the U.K. has found an effective way to explain EDS symptoms & needs to the public in a casual and light-hearted tone. Click […]
When EDS Strikes Families
By Sandra Strege-Mims Barr, PhD. Sandra Leads the Ehlers-Danlos Syndrome Local Support Group in Dallas, TX. We will be looking today at the impact that a diagnosis of Ehlers-Danlos Syndrome has on a couple or a family. Most families proceed through day after day earning money from one or two incomes, using that money to […]
Being Your Own Advocate
Author: Jonathan Rodis President-Massachusetts Chapter of the National Marfan Foundation Head-EDS Massachusetts and New England Support Group “Wow..how many times have you or loved one or a friend been told something totally wrong about your condition from a doctor? Of course, I know the answer…many, many, many times. The worst imaginable place to hear it […]
First International Symposium on Ehlers-Danlos Syndrome
This International symposium will focus on current progress and controversies in diagnosis, treatment and pathogenesis of Ehlers-Danlos syndrome. Experts will present the latest developments in the field, both of the clinical and molecular level.
