Archive for the ‘Managing Symptoms’ Category

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FREE Educational Webinar on Bracing for EDS – RECORDING AVAILABLE

Posted on June 19, 2014

EDS Awareness invites you to watch this FREE educational video! On June 18th, Eric Palmer spoke about bracing for EDS.  He is a board certified Orthotist and Prosthetist with over 20 years of experience.   Don’t miss future LIVE sessions offered the 1st and 3rd Tuesdays of each month!      “EDS Awareness Educational Series” is a […]

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“Doctor Speaker Series”: Cardiac manifestations in EDS – RECORDING AVAILABLE

Posted on May 8, 2014

  On May 7th, Dr. Staci Kallish spoke about cardiac manifestations in EDS. EDS Awareness’ Doctor Speaker Series is a webinar program hosted by EDSawareness.com and sponsored by www.bodysupportstore.com  Upcoming FREE sessions will be offered the 1st and 3rd Wednesdays of each month.  Hope you can join us!  CLICK HERE for the recording More about Dr. Staci Kallish Click […]

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Next-Generation Sequencing (NGS), Faster and More Economical for EDS & Marfans

Posted on April 21, 2014

      Better,  faster and more economical methods are emerging to analyze the genetic factors affecting our health. “Genetic factors play some part in nearly all health conditions and characteristics. However, there are some conditions in which these factors are almost fully responsible for causing the condition. These are called genetic disorders, or inherited […]

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Free Webinar: Dr. Chopra presents EDS Pain Management (Part 1 of 2)

Posted on March 18, 2014

EDS Awareness invites you to watch this FREE webinar presented by Dr. Pradeep Chopra on EDS Pain Management. (Part 1)  A recording is available for replay. Receive INVITATIONS for upcoming FREE webinars by signing up for the “FREE Report” on the homepage. Or click HERE.  CLICK HERE for the link to the recording of this webinar session.  CLICK HERE […]

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Chronically in Pain and in Love – POTS and Ehlers-Danlos Syndrome

Posted on February 10, 2014

The diagnosis was bittersweet. It was good to finally have an answer …. Ehlers-Danlos Syndrome! By Emily McComas CHARLESTON, W.Va. — Kyli Wolfson was losing hope. “For most of her life, she had struggled with a lack of energy. She couldn’t keep up with her peers in middle school gym class and tried to work with […]

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CrowdMed.com Website Helps Solve “Medical Mysteries”

Posted on February 7, 2014

CrowdMed.com helps patients collaborate with others as they explore rare medical conditions, such as Ehlers-Danlos Syndrome. Many have received suggestions that they can research and take to their doctor. Always consult your doctor first. BY: Kate Merrill NEWBURYPORT (CBS) – “Only a few years ago dancing, art, and music came easy to Diana Cleaveland. Now the 51-year-old […]

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Hypermobile UK Mum will Give the Singing Performance of a Her Lifetime

Posted on January 30, 2014

Chloe is following her dreams by giving a public performance debuting their first album Songbird. By Rene Gerryts A CHRONICALLY ill mum is to defy the odds by performing her debut album live. Chloe Evans-Lippett suffers from hypermobility syndrome that’s left her wheelchair dependent, in constant pain with hips that dislocate up to 11 times a […]

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Top 3 Products for EDSers

Posted on December 8, 2013

Check out these product reviews from our EDS support group! **ALL proceeds go to help local EDS support groups and EDSawareness.com programs when you order from www.bodysupportstore.com  Click here to view ALL PRODUCTS offered in the online store. _____________________________________________________________________ EDSers’ PRODUCT REVIEWS: Our Ehlers-Danlos support group discussed products that have made a big difference in reducing pain. Here are EDSers’ […]

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