Archive for the ‘Managing Symptoms’ Category
Posted on July 16, 2014
EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS. Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides used in this presentation PRESENTER: Dr. Peter Rowe is a […]
Posted on July 11, 2014
POTS experts, Dr. Blair Grubb and Dr. Geoffrey Heyer, explain the symptoms and treatments. Studies have indicated that 1 in 4 of those diagnosed with POTS are disabled. Exercise helps by enhancing the effectiveness of the peripheral skeletal muscle pump, according to Dr. Grubb. By Deborah Kotz. As a consumer health reporter, I assume I’ve heard of every health […]
Posted on July 9, 2014
Wendy Pitts is an artist who stays positive while juggling 4 kids, a business and Ehlers-Danlos Syndrome. INSPIRING residents living with long-term conditions and disabilities have been showing off their works of art after winning a competition to tell their story through a picture. Organised by Warrington CCG, judges from the health board’s quality committee had the difficult […]
Posted on July 8, 2014
Chloe is determined that EDS/HMS won’t define her life. She continues to pursue her music, and debuted her first album this year, alongside fellow musician Steve Jones! Chloe’s community will host a musical extravaganza benefit to help with her Ehlers Danlos/Hypermobility Syndrome. By Tara Cox. “A WEST Dorset UK community is rallying round to help chronically ill mum […]
Posted on July 5, 2014
On July 5th, supporters of this 3-year-old EDSer jumped at the chance to raise money for his medical equipment. Eleven people, including his mother, actually jumped from a plane! Skydivers are raising money for a toddler with two serious medical conditions. Fundraisers from Burnham and South Woodham are preparing to jump from a plane on Saturday […]
Posted on July 3, 2014
The OPUS hospital music program helps James cope with Ehlers-Danlos pain. In addition, a recent study showed 29% lower anxiety levels and a lower average breathing rate in patients who were played music during their operations. Click here to watch videos demonstrating how the OPUS music therapy program is helping patients. By Dan Russell, Nottingham Post. “MUSIC is helping an 11-year-old boy […]
Posted on July 2, 2014
EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders. Don’t miss this event! Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides […]
Posted on June 30, 2014
Annabelle’s charity continues to garner support and raise awareness of Ehlers-Danlos Syndrome (EDS). By Saiqa Chaudhari. “A GLITTERING ball saw 180 guests raise more than £3,000 for a charity which aims to “make the invisible visible”. Brandlesholme charity Annabelle’s Challenge hosted the glamorous event at The Village Hotel in Bury in aid of national organisation EDS UK. The […]
Loading ...
