Archive for the ‘Managing Symptoms’ Category
Posted on December 1, 2013
By ED KEMMICK/Billings Gazette Jeff Hanson has EDS and while struggling with it he is determined to stay strong and make the best of this situation. “Jeff Hansen has Ehlers-Danlos syndrome, a rare connective tissue disorder with symptoms that include extreme flexibility. In mid-November, Jeff Hansen knew he’d reached an important milestone. He […]
Posted on December 1, 2013
Katie Vale has finally discovered some methods to help her manage her Ehlers-Danlos Syndrome symptoms. By: Lucy Benyon Published: Sun, December 15, 2013 “Katie Vale was diagnosed with Ehlers- Danlos disease which causes regular injuries [PH] Katie, 34, lives in Essex in the UK. Eleven years ago she was diagnosed with Ehlers-Danlos syndrome, a condition that causes her […]
Posted on November 27, 2013
EDS Awareness invites you to watch this FREE webinar recording! Our presenter for November 20th was Stephanie Gandomi, MS, CGC, LGC She is a Licensed Genetic Counselor Her topic was: “The Evolution of Genetic Diagnosis and Why This Matters In Patient Care!” The recording of this presentation is now available at the following link: Click here to […]
Posted on November 26, 2013
This courageous young lady has a faith in God that helps her manage her pain from Ehlers-Danlos Syndrome. By: Daniel Elizondo Silsbee, TX Living life as a vibrant 14-year old teen is the epitome of life. Football games, birthday parties, hanging out with friends. It’s that age when you are on the brink of maturing […]
Posted on November 15, 2013
Dr. Pradeep Chopra, Director, Pain Management Center Interventional Pain Management Center of Rhode Island Learn more from his very informative video presentation. Be sure to watch all 6 presentations by EDS experts, including Dr. Henderson, Dr. Francomano, and more. All the videos below have been updated on 11/12/2013 to include the presentation slides of each doctor. These […]
Posted on November 14, 2013
Dr. Heidi Collins, EDS expert and patient, talks about how Ehlers-Danlos affects digestion, nutrition, bowel function, and gut-related immune function. She indicates that gastrointestinal complications of EDS are common, potentially disabling, under-appreciated by clinicians, and well-documented in existing literature. Learn more from her very informative video presentation. Be sure to watch all 6 presentations by […]
Posted on November 13, 2013
Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life. She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]
Posted on November 5, 2013
We had a special event for our EDS Speaker Series session on November 4, 2013. Our EDS Partners at Arming Champions (Allen and Carolyn Fisher) conducted an interview with Alberto Friedmanncall for them who is a Martial Arts Master with Ehlers-Danlos Syndrome. He also teaches martial arts and self-defense to children and adults with special needs. You can listen […]
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