Archive for the ‘Managing Symptoms’ Category
Posted on October 16, 2014
Listen to this webinar about EDS and POTS. Also, watch another video of Dr. Rowe’s webinar for EDS Awareness Educational Series presented in July 2014.
Posted on October 10, 2014
Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]
Posted on September 17, 2014
Listen to this FREE online learning session about EDS & Psychiatric illness misdiagnoses by Dr. Richard Barnum, Psychiatrist. How can families handle situations where they feel misunderstood by their healthcare providers? Unfortunately, many EDSers are misdiagnosed with psychiatric conditions before their Ehlers-Danlos, Dysautonomia or associated physical conditions are identified. Dr. Barnum addresses what can happen in extreme […]
Posted on September 14, 2014
September is “Pain Awareness Month” in Scituate, RI and several other U.S. towns. Advocates are raising awareness of chronic pain conditions and the U.S. Pain Foundation. Stuart and Ellen Lenox Smith have been very active with the U.S. Pain Foundation and EDS Awareness for Ehlers-Danlos Syndrome. Their “Pain Awareness Event” at Miriam Hospital in Providence on Saturday, Sept. 27th will conclude […]
Posted on September 6, 2014
Megan has a new motivation to stay active despite Ehlers Danlos Syndrome. Her high-school tennis coach has paved the way for her to participate in modified varsity competition! Her strength and dedication has inspired her coach and peers. Megan also participates in the EDS support group in Columbus, Ohio. By Steve Blackledge “Les Somogyi couldn’t help but feel for […]
Posted on September 5, 2014
Megan is a talented artist with Hypermobile EDS. Watch her video story featured on a Philadelphia TV news station. This is a good example of how patients can spread awareness of Ehlers Danlos Syndrome in their local communities. Watch the video EDS Awareness Notes: In media reports, there tend to be some inaccuracies or misleading statements. We wanted to […]
Posted on August 29, 2014
EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS. Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com PRESENTER: Alan Pocinki, MD, FACP TOPIC: Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue Click here for the recording of the educational program Click here […]
Posted on August 12, 2014
EDS Awareness invites you to listen to a FREE online learning session! On August 6, Dr. Derek Neilson’s presented EDS Hypermobility Type and what is needed to change the perception of this condition. Sponsored by www.bodysupportstore.com WHAT: ““EDS Awareness Educational Series” – a webinar program hosted by EDSawareness.com PRESENTER: Dr. Derek Neilson – Assistant Professor […]
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