Ehlers Danlos Syndrome Featured in TV News Story – Watch Video
Megan is a talented artist with Hypermobile EDS. Watch her video story featured on a Philadelphia TV news station. This is a good example of how patients can spread awareness of Ehlers Danlos Syndrome in their local communities.
EDS Awareness Notes: In media reports, there tend to be some inaccuracies or misleading statements. We wanted to point out that this news report portrays EDS as more rare than it actually is. And the doctor generalizes that EDS patients can stretch their skin 4 inches. (Stretchy skin is typically seen only in Classical Type EDS – and not to this extreme. Megan has Hypermobile Type EDS.) Some inaccuracies are bound to happen in the media, but this should not deter us from getting the word out!