Father-Daughter Dance for Ehlers Danlos Syndrome


Five-year-old Amelia Gibson and her father will be holding a “Father & Daughter Dance” on January 17th to raise awareness and funds for Ehlers Danlos SyndromeAmelia and her mother are raising EDS Awareness in Indiana hospitals by giving packages containing personal-care items to patients. Amelia and her mother have EDS.

Watch the video about their EDS awareness project to help hospital patients. 


“It’s a father daughter dance, to benefit a worthy cause.

News 10 recently introduced you to a little girl named Amelia Gibson.

She’s living with a connective tissue disorder called Ehlers-Danlos Syndrome.

Amelia continues her mission to help others by putting together care packages for those forced to stay in the hospital.

Now, it’s time to forget about the hospital stays and tissue disorders, as organizers are putting together an Enchanted Frozen Ball.

“We are very excited to be able to provide, to put on this fundraiser. Not only to give the fathers and daughters a special event to come to and make memories at, but also to help aid in research for Ehlers-Danlos,” Amelia’s mother Brandy said.

Tickets can be purchased this Friday at the South Vermillion boys basketball game.

They are $50 for each father daughter combo, and will not be sold at the door on the night of the event.

All proceeds will benefit Ehlers-Danlos research.”


Click here for the original source of this article

We appreciate your Likes and Comments

Leave a Reply

Your email address will not be published. Required fields are marked *

Get Webinar Announcements And Our FREE Guide

Support EDS Awareness

See all upcoming events

Current Poll

How long until you received a proper diagnosis for EDS?

View Results

Loading ... Loading ...