Mother-Daughter Duo Use Ehlers Danlos Syndrome to Give Back

By Alia Blackburn.

Five-year-old Amelia and her mother are raising EDS Awareness in hospitals.  They give packages containing personal-care items to help hospital patients, and use the opportunity to share about Ehlers-Danlos Syndrome.



Looking at Brandy Gibson and her 5-year-old daughter, Amelia, you will notice the bond they share is inevitable.

Brandy and Amelia also share the same disorder. Just two years ago, Amelia was diagnosed Ehlers Danlos Syndrome, a connective tissue disorder affecting the joints and organs.

“We’ve been going to the hospital with Amelia since she was about 6 months old,” Brandy says.

After numerous hospital stays, Brandy and Amelia came up with an idea of their own.

“You sometimes don’t expect that you’re going to be staying at the hospital, so you don’t always pack everything you need,” Brandy explains.

As part of the initiative, Amelia’s Project, the mother-daughter team assembles care packages for families having to stay overnight at the hospital. Their goal is to provide comfort items for both the child and parents, in hopes of limiting the time they have to be away from their children.

The care packages contain basic essentials such as toothpaste, hair care products, deodorant, snacks and other items necessary for an overnight stay.

The gesture not only strengthens the bond between a mother and her daughter, it also raises awareness, reuniting other families going through similar situations.

“There is always somebody else with what you have,” Brandy says, “It helps to talk to people and these projects can bring everyone closer together.”

Amelia’s Project continues to partner with people in the community for donations.

If you are interested in donating items to Amelia’s Project, or would like to learn more, visit the official Facebook page. You can also send an email to

This is a fantastic way to care for others while visiting the hospital, and a good opportunity to raise EDS Awareness.

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