Articles
Posted on July 19, 2022
For our August newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, writer Beth Miller speaks with Cassandra Campbell, a coach, author and EDS advocate. Campbell shares […]
Posted on June 25, 2022
For Chronic Pain Partners, journalist Karina Sturm had the honor to speak with Dr. Russell “Chip” Norris from the Norris Lab at MUSC, a research laboratory dedicated to finding the genetic cause(s) for the hypermobile Ehlers-Danlos syndrome. Sturm speaks with Norris about their current research and how it will change care for people with […]
Posted on June 23, 2022
For our July newsletter, the Chronic Pain Partners media team interviewed a diverse group of people to highlight the diversity of our community and emphasize the challenges that arise when one belongs to more than one minority. In this interview, medical writer Sarah Cook, PA-C, speaks with Jack Briar Pollock, an EDS advocate and artist […]
Posted on June 23, 2022
For our July newsletter, the Chronic Pain Partner media team is excited to introduce the EDS community to the new middle-grade* fiction book “Fight + Flight,” which features a character with EDS! Journalist Karina Sturm had the pleasure to talk to author Jules Machias about their life with Ehlers-Danlos syndrome, their career as a writer, […]
Posted on June 23, 2022
For our July newsletter, journalist Karina Sturm spoke with Donna Sullivan, board member of The Coalition Against Pediatric Pain (TCAPP). Sullivan lives with EDS and has several affected children as well. In this interview, she shares with Chronic Pain Partners her decade-long experience working with families accused of child abuse due to a medically […]
Posted on June 22, 2022
For our July newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, journalist Jackie Saa speaks with Kaleena Deshawn, a Boston-based intermedia artist, makeup enthusiast, and zebra […]
Posted on May 26, 2022
In my decades of working with people with EDS, the number one comment I get is, “my doctor will not treat me and says it is all in my head.”And lately, some physicians and psychiatrists suggest that people with EDS have lots of mental health conditions, which is harmful to the community. In the following […]
Posted on May 20, 2022
Introduction EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic Pain Partners to speak about a recently published review on the psychological and psychiatric aspects of Ehlers-Danlos syndrome. Dr. Chopra has been treating complex pain patients with a focus on people with Ehlers-Danlos syndrome for decades and is a passionate advocate for EDSers across […]
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