Articles
to the paper on psychological
and psychiatric aspects of the
Ehlers–Danlos syndromes
Posted on May 18, 2022
EDS expert and pain specialist Dr. Pradeep Chopra contacted Chronic PainPartners to speak about a recently published review on the psychologicaland psychiatric aspects of the Ehlers-Danlos syndromes and HypermobilitySpectrum Disorders. Dr. Chopra has been treating complex pain patientsfocusing on people with the Ehlers-Danlos syndromes for decades, and is apassionate advocate for patients around the world.The […]
Posted on May 18, 2022
CW: Discussion of suicidal thoughts and depression. [None of the information provided in this Q&A is to be taken as medical advice; please consult a doctor if you have questions about your medical condition.] For our June newsletter, the Chronic Pain Partners media team interviewed a diverse group of people […]
Posted on May 17, 2022
For our June newsletter, the Chronic Pain Partners media team interviewed a diverse group of people to highlight the diversity of our community and emphasize the challenges that arise when one belongs to more than one minority. In this interview, journalist Karina Sturm speaks with Adrienne Ferron, an EDS advocate, podcaster, and social media influencer […]
Posted on April 19, 2022
John Ferman Gilbert Torres Ehlers-Danlos syndrome is a condition that affects every person differently. Even within the same type, symptoms can […]
Posted on March 30, 2022
Join us on Tuesday, May 10th at 12 pm EDT on a live Zoom call to learn ways to help improve the quality of your life if you face EDS. As we know, there is no cure, but these suggestions might help you have better control of your out-of-control disorder. My special guest speaker is […]
Posted on March 26, 2022
Book Review Meghan O’Rourke and The Invisible Kingdom
Posted on March 24, 2022
Doctor & patient communication
Posted on February 28, 2022
Funny Bone Newsletter – March 2022 presented by EDS Awareness This is a community-centered project with people older than 45 who want to share their experiences about aging as a person with EDS. This project will be published as part of the EDS Awareness Newsletter in a collaboration between CEO John Ferman and journalist Karina […]