Articles
Posted on September 19, 2022
For our Chronic Pain Partners newsletter, journalist Karina Sturm spoke with Christie Cox, fellow zebra and author of the new EDS book “Holding It All Together When You’re Hypermobile.” Cox shares her journey to getting diagnosed with EDS, what motivated her to write this book, and what the book is all about. [We will review […]
Posted on September 19, 2022
“He helped my daughter get from being bedridden to going back to college,” says Michele Pestana when I meet her at Healy Physical Therapy and Sports Medicine in Providence, Rhode Island, on a hot summer day in July 2022. Pestana is 47 years old and has EDS, like most of Dr. Michael (Mike) Healy‘s patients. […]
Posted on September 18, 2022
[CW: The following article is for an adult audience due to its content and language. We are sharing challenges related to having sex and ways of overcoming those.] For our October newsletter, journalist Jackie Saa spoke with Mary Cordaro, admin of the “Sex-tacular EDS Zebras” group on Facebook. The idea behind the group was that […]
Posted on August 24, 2022
[CW: The book features an active shooter drill and talks about gun violence. This might be triggering to some people. The review is written so that an adult audience, as well as a younger audience, can get an impression of this book, but please keep in mind the potential triggers.] Chronic Pain Partners […]
Posted on August 21, 2022
[CW: The following article discusses suicidal thoughts and ideation. This might be triggering for some people. If you or your loved one is experiencing an acute crisis, here are some phone numbers to consider in the US: The Lifeline (suicide & crisis line): 988 – The Trans Lifeline (trans peer support): 877-565-8860 – The Trevor […]
Posted on August 21, 2022
[CW: The following article discusses suicidal thoughts and ideation. This might be triggering for some people. If you or your loved one is experiencing an acute crisis, here are some phone numbers to consider in the US: The Lifeline (suicide & crisis line): 988 – The Trans Lifeline (trans peer support): 877-565-8860 – The […]
Posted on July 25, 2022
[CW: The following article is for an adult audience due to its content and language. We are sharing challenges related to having sex and ways of overcoming those with concrete examples.] For our August newsletter, the Chronic Pain Partners media team brought together people from the EDS community and medical professionals to share […]
Posted on July 19, 2022
Archer Young For our August newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, writer Beth Miller speaks with Archer Young, a young trans man with EDS […]