Ehlers-Danlos

Digital graphic with a dark blue DNA helix and bold text reading ‘Update on gene linked to hypermobile EDS’ on a light blue background

Update On Gene Linked to Hypermobile EDS

A new study, led by Dr. Cortney Gensemer, marks a genetic breakthrough in hEDS research. The KLK15 variant (p.Gly226Asp) has been identified as a direct disease-causing gene in hypermobile EDS, causing connective tissue dysfunction and immune system dysregulation.

Ehlers-Danlos Nursing Continuing Education Program

We are very excited to announce the introduction of the First, Online, Free, Ehlers-Danlos Nursing Continuing Education program. Nursing is the largest healthcare profession, with over 3.6 million nurses in the US alone. Nurses spend more time with patients than many other health professionals, and they are experts in helping patients live with their health […]