Parental Preparation for Securing Accommodations at K-12 School for Children with the Ehlers-Danlos Syndromes

4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome

Unaccommodating Accommodations

Book Review: The Bendy Twisty Zebra by Kimby Maxson

Interview with Donna Sullivan, TCAPP, about wrongful child abuse allegations and medically complex children

Cincinnati Children’s Hospital Connective Tissue Disorder Clinic Video

Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.

Father Raising Awareness with Ryan Challenge and Vascular Ehlers-Danlos Syndrome (VEDS)

  By: Hillary Floren Posted: Aug 14, 2018 06:48 AM MDT EL PASO, Texas – Ryan Dolliver is like most 3-year-old boys.  He loves to play with his sister, laugh, destroy things and he can be mischievous. Ryan has a great smile, and when he laughs it is infectious. He has no clue he is living with […]

Being different doesn’t mean that you’re alone with EDS

No More Monkey Bars: A 13-Year-Old’s Journey With A Rare Genetic Condition by Isabella ‘Kitty’ Yim An email from Louis DeLauro, a middle school teacher at the Grey Nun Academy in Yardley, Pennsylvania. He wrote: “Isabella Yim is 13 years old and is a star in my Language Arts Classroom. All of us found her […]