Articles
Webinar: “Pain Management and Ehlers-Danlos Syndrome”
Topic: “Pain Management and Ehlers-Danlos Syndrome” Presenter: Dr. Kenneth Goldschneider from Cincinnati Children’s Hospital. Click here to access the recording ______________________________________________ About Dr. Kenneth Goldschneider Director of the Pain Management Center at Cincinnati Children’s Hospital MD: University of Connecticut Health Center School of Medicine, Farmington, CT, 1991. Residency: Pediatrics, Duke University Medical Center, Durham, NC, 1991 […]
“Katie Couric Show” features Ehlers-Danlos – See the video!
Ehlers-Danlos Syndrome was discussed on the daytime talk show, Katie. We are providing links to watch the show, and encourage EDSers to add comments to the show’s website. Watch the entire TV episode Click Here. Visit the interactive ABC TV station website, where you can chime in with your comments: Here are 2 video clips from the Katie […]
What’s your opinion? 23andMe Genetic Testing Debate-RECORDING NOW AVAILABLE
Listen to a debate about ethical and legal issues of direct-to-consumer genetic testing. Link is provided below. The debate was spurred on November 22, when the FDA ordered the 23andMe company to stop marketing its product– $99 genetic test offered direct-to-consumers. The FDA warning letter indicated that the company hadn’t secured marketing authorization and expressed concern that inaccurate results could […]
Top 3 Products for EDSers
Check out these product reviews from our EDS support group! **ALL proceeds go to help local EDS support groups and EDSawareness.com programs when you order from www.bodysupportstore.com Click here to view ALL PRODUCTS offered in the online store. _____________________________________________________________________ EDSers’ PRODUCT REVIEWS: Our Ehlers-Danlos support group discussed products that have made a big difference in reducing pain. Here are EDSers’ […]
Emily Comber Discusses Her Life With Ehlers-Danlos Syndrome
Emily has learned to deal with the challenges of raising 2 children despite her Ehlers-Danlos Syndrome. By EMMA INNES “A mother has been left devastated by a rare condition that leaves her barely able to cuddle her children. Emily Comber, 31, suffers from a rare syndrome that causes her constant pain and makes her joints ‘pop […]
Doctor Speaker Series – “EDS: A Dental Perspective” – Recording Available
Our presenter for December 4th was Dr. Carl Mentesana, DDS. His topic was: “EDS: A Dental Perspective“ Click Here for the recording Note: the presentation slides start after about 7 minutes into the program Addendum to the Patient Q & A Question: Please post the […]
Bethany Puts Aside Ehlers-Danlos to Help Others This Christmas
Bethany wants to celebrate Christmas by raising funds for toys at a local hospital. A LITTLE girl with a rare illness is defying her condition and taking on her own Christmas fundraising mission to help other poorly children. Bethany Hambleton, nine, suffers from Ehlers Danlos Type III – a disorder which means she has to […]
Jeff with EDS – “I Just Need to Give my Crazy Movie a Good Ending.”
By ED KEMMICK/Billings Gazette Jeff Hanson has EDS and while struggling with it he is determined to stay strong and make the best of this situation. “Jeff Hansen has Ehlers-Danlos syndrome, a rare connective tissue disorder with symptoms that include extreme flexibility. In mid-November, Jeff Hansen knew he’d reached an important milestone. He […]
