Dealing with EDS
Discovery Health Channel: Ehlers-Danlos Syndrome
Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face. It addresses EDS Hypermobility and Vascular types.
Explaining Disability-Part of What Makes Us Disabled
Author: Jonathan RodisPresident-Massachusetts Chapter of the National Marfan FoundationHead-EDS Massachusetts and New England Support Group “I wanted to share with you something I wrote to help everyone understand what it is like to be disabled, what it is like to have an invisible disability, what to do if you find yourself trying to explain your […]
Reducing Pain and Effort in the Kitchen
EDSers are often frustrated with kitchen implements – they may be ineffective, difficult to use, or downright painful! Opening jars, bottles and cans are high on the list of complaints. Slicing, peeling, and cutting with knives is often painful. Lifting heavy pots, especially those with long handles, create torque on the wrist that makes it […]
Side-Sleepers Need Knee Support
Sometimes when I am in pain with EDS, I need to sleep on my side. In the past this has been very difficult because I toss and turn until I get the blanket correctly positioned between my knees. This drives me nuts, and I end up moving around in bed to try to get comfortable. Most of […]
What I use to Rest and Sleep
Having EDS … it is often very difficult to get comfortable. I find that this multi-postition back support system helps me rest and sleep. I can use it on the floor or in bed. I can position the wedges the way I want them and get support where I need it. This set is made up of three […]
Do You Need Good Wrist Support?
Wrist instability is a very common problem for EDSers. I need support while I’m using my computer or driving long distances. Stabilizing my wrist can prevent dislocations from lifting or carrying items. Bracing reduces pressure on my wrist when I experience “torque” – a result of sideways or twisting movements. Keeping my wrist in a straight and still […]
The “Handshake” Mouse for EDSers
An ordinary horizontal mouse requires your forearm to twist away from its natural position. This can create more problems for unstable joints like mine. EDSers do better with a grip that is the same as an ordinary mouse, just turned sideways into a handshake position. I got used to the Handshake Mouse very quickly. This Vertical Mouse […]
