For many living with Ehlers-Danlos syndrome (EDS), the road to diagnosis is long, exhausting, and often isolating. The upcoming documentary “Exhausted Existence – An EDS Story (2024)” aims to change that. This powerful film brings to light the struggles of those with EDS, the failures of the medical system, and the urgent need for greater awareness.  

EDS is a group of genetic connective tissue disorders often dismissed or misdiagnosed, leaving patients fighting for recognition and care. “Exhausted Existence” amplifies the voices of individuals who have spent years navigating an often broken healthcare system—stories that will resonate with anyone who has experienced medical gaslighting, disbelief, or diagnostic delays.  

The film has already received recognition, with its world premiere taking place on January 31st, 2025, at the Hollywood International Diversity Film Festival. 

We are excited to share that we will be writing a full review of the film in an upcoming newsletter and conducting an exclusive interview with the filmmaker Jen Kain. 

And this isn’t the only EDS documentary making waves—later this year, “Complicated” will also be released, further increasing awareness of EDS and the challenges those with the condition face. With more films spotlighting EDS, we are finally seeing much-needed representation and advocacy on screen.  

If you or someone you know has EDS—or if you want to learn more about why this condition needs more attention—these are films you won’t want to miss.  

Learn more about “Exhausted Existence”: https://www.goodstuff-story.co/exhuastedexistence

March 2025