Diagnosis

Causes, Signs, Diagnosis, and Treatment for Ehlers-Danlos Syndromes

By Catherine Roberts You likely haven’t given too much thought to your skin, joints, and blood vessels lately—unless you’ve suffered an wound that required stitches or a joint injury that put you off your game for a few weeks. However, for patients with Ehlers-Danlos syndromes, a set of inherited disorders that strike these connective tissues, […]

2017 EDS Classification Webinar and American Journal of Genetics Articles

The 2017 EDS Classifications: Your Questions Answered!

My Wife Had EDS and Did Not Know IT! – 8th Year Anniversary

This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos…  We were married for 41 years.  You’d think that after all of that time you would know everything there was to know about a person. –          I knew Carol was a loving […]

Hypermobile EDS Educational Session – April 21, 2016

Hypermobile Ehlers-Danlos Syndrome Educational Session at Cincinnati Children’s Hospital Medical Center Please join us for an hour long session hosted by Dr. Derek Neilson discussing the diagnosis and management of hypermobile Ehlers-Danlos Syndrome (EDS). Dr. Neilson will review the criteria used to diagnose hypermobile EDS, and discuss general recommendations that help patients with EDS.  He will […]

8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Syndrome

Once you are diagnosed with Ehlers-Danlos Syndrome, it can be an overwhelming process to find supportive medical care and learn ways to live life more efficiently and safely.  Get a head start by gleaning some valuable pointers  from the experiences of veteran EDSers like Ellen. The information in this article should not be considered as professional […]

Ehlers-Danlos Syndrome May Increase Susceptibility to Infections

People with Ehlers-Danlos Syndrome (EDSers) may have higher risk for infections. Fragile skin and poor healing may lead to skin infections.  EDSers often have a lowered immune system, possibly due to chronic stress on multiple body systems or an IgG-3 deficiency.  By JORAWSTRON People with EDS seem to get more infections than people without EDS, and these infections often […]

Double-jointed? Often in Pain? It Could be Ehlers-Danlos Syndrome!

Ehlers-Danlos Syndrome (EDS) was once thought to be a rare disorder, but EDS experts say its prevalence is under-estimated and its diagnosis is often missed! Learn the signs.   By Abi Jackson _ If you suffer from these ailments, you could have EDS – a rare condition of the joints. Here’s what you need to know. If you don’t know […]

Free Webinar: “Introduction to Ehlers-Danlos Syndrome” by Dr. Brad Tinkle – Recording Available

Watch this FREE video presentation! Dr. Brad Tinkle presents “Introduction to Ehlers-Danlos Syndrome”.   Sponsored by www.bodysupportstore.com     _  Click here for the recording of this presentation _  Click here for the slides used in this presentation _ To browse MORE VIDEO presentations by other EDS Experts – Click Here  (then select “previous page” to view more recordings.) _ About our […]