Archive for the ‘Diagnosis’ Category

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EDS Awareness Speaker Series – The Evolution of Genetic Diagnosis – Recording Available

Posted on November 27, 2013

EDS Awareness invites you to watch this FREE webinar recording! Our presenter for November 20th was  Stephanie Gandomi, MS, CGC, LGC She is a Licensed Genetic Counselor Her topic was: “The Evolution of Genetic Diagnosis and Why This Matters In Patient Care!” The recording of this presentation is now available at the following link:  Click here to […]

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TV News Report: Ehlers-Danlos Leads to Bogus Child Abuse Allegations – Watch Videos

Posted on November 17, 2013

All charges were finally dismissed after false child abuse allegations kept Andrew Huber separated from his daughter for nine months. She has been diagnosed with EDS. Watch the videos below to hear about the family’s ordeal.  Similar articles appeared on Yahoo Shine and in the news. Watch them on the  Katie Couric Show  which aired on […]

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Innovative Blood Test for Vascular Ehlers-Danlos Syndrome

Posted on September 19, 2013

Researchers are making some progress discovering a potential biomarker for aortic dissections related to Vascular Ehlers-Danlos Syndrome.  Posted by: Anna Ishibashi “Researchers from ShrinersHospital for Children, OregonHealth & ScienceUniversity, Baylor College of Medicine and the Texas Heart Institute, have demonstrated for the first time that fibrillin-1 in the blood stream could be a biomarker to diagnose aortic aneurysms and aortic dissections. […]

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