Archive for the ‘Diagnosis’ Category

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Different Types of Ehlers-Danlos

Posted on January 25, 2013

More specifics about the different forms of EDS Hi, I am Bethanie Thorn and this is my explaination of Ehlers-Danlos Syndrome. My Facebook and E-mail as Promised: Facebook – http://www.facebook.com/#!/BethaniesBattle?fref=ts E-mail – bethaniesbattle@gmail.com

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Dad Discovered With EDS While Tying His Shoes

Posted on January 16, 2013

A DAD from Sheffield lived with a rare disease for four decades – until he was diagnosed by a doctor who spotted him tying his shoelaces with his wrists bent at an unusual angle. Ian Redfern’s six-year-old daughter Evie also has Classical Ehlers Danlos Syndrome, which causes her to bruise and damage her skin easily. […]

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Dad Discovered With EDS While Tying His Shoes

Posted on January 14, 2013

A DAD from Sheffield lived with a rare disease for four decades – until he was diagnosed by a doctor who spotted him tying his shoelaces with his wrists bent at an unusual angle. Ian Redfern’s six-year-old daughter Evie also has Classical Ehlers Danlos Syndrome, which causes her to bruise and damage her skin easily. […]

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This Young Woman Dislocates Her Shoulder Up to 10 Times a Day By Just Sneezing!

Posted on January 13, 2013

Lauren has not been diagnosed with EDS yet. But she has many of the symtoms.  Trying to work with this disorder can be difficult. “- This Genetic condition means  Lauren’s collagen is too weak to support her joints – She goes to work  at McDonalds even when she is in pain – Doctors dislocated Lauren’s […]

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A Dog with Ehlers-Danlos Syndrome?

Posted on January 13, 2013

This is an incredible story of a Dog with Ehlers-danlos Syndrome? The dog was diagnosed with EDS by Dr. Marianne E. Bailey who is a veterinarian at South Arundel Veterinary Hospital in Edgewater, MD. “My veterinarian says he thinks my dog may have Ehler Danlos Syndrome. She has really stretchy skin and, when she gets […]

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A Dog with Ehlers-Danlos Syndrome?

Posted on January 12, 2013

This is an incredible story of a Dog with Ehlers-danlos Syndrome? The dog was diagnosed with EDS by Dr. Marianne E. Bailey who is a veterinarian at South Arundel Veterinary Hospital in Edgewater, MD. “My veterinarian says he thinks my dog may have Ehler Danlos Syndrome. She has really stretchy skin and, when she gets a cut, it […]

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Jordan has Seen His Share of Hospitals.

Posted on January 11, 2013

Jordan is a brave young man. At nine years old he sees the need for giving to others, even while he is struggling himself with Ehlers-Danlos Syndrome. “Jordan Corvin, Saugerties boy brings joy to Columbia Memorial patients. Jordan suffers from Ehlers-Danlos Syndrome, a disorder affecting connective tissues that causes acid reflux and seizures. He goes to […]

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Poppy Urgently Needs Her Intestines and Stomach Replaced

Posted on January 8, 2013

What an incredible story of a 5 year old girl who got to come home from the hospital for Christmas. How difficult EDS can be to even the youngest of our community!   By Alex Ross                                                                    Published on Friday 21 December 2012 09:22        The Gazette “A BATTLING youngster is hoping to spend Christmas at home […]

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