Archive for the ‘Community’ Category
Posted on September 5, 2014
Megan is a talented artist with Hypermobile EDS. Watch her video story featured on a Philadelphia TV news station. This is a good example of how patients can spread awareness of Ehlers Danlos Syndrome in their local communities. Watch the video EDS Awareness Notes: In media reports, there tend to be some inaccuracies or misleading statements. We wanted to […]
Posted on September 2, 2014
Maddison Parker is looking forward to having five minutes with Australian Prime Minister Tony Abbott to talk about Ehlers-Danlos Syndrome. Her persistence seems to be paying off – she is awaiting a date and time to be confirmed for the meeting. “MADDISON Parker is one step closer to getting five minutes with Prime Minister Tony Abbott. […]
Posted on August 16, 2014
Caregivers are the unsung heroes in the life of the chronically ill. They offer critical support for patients living with Ehlers Danlos Syndrome. Learn 7 practical ways you can appreciate your caregiver and help them manage their additional responsibilities. by Toni Bernhard, J.D. I know how fortunate I am to have a loving caregiver. Although he may not see it this way, […]
Posted on August 12, 2014
EDS Awareness invites you to listen to a FREE online learning session! On August 6, Dr. Derek Neilson’s presented EDS Hypermobility Type and what is needed to change the perception of this condition. Sponsored by www.bodysupportstore.com WHAT: ““EDS Awareness Educational Series” – a webinar program hosted by EDSawareness.com PRESENTER: Dr. Derek Neilson – Assistant Professor […]
Posted on July 11, 2014
POTS experts, Dr. Blair Grubb and Dr. Geoffrey Heyer, explain the symptoms and treatments. Studies have indicated that 1 in 4 of those diagnosed with POTS are disabled. Exercise helps by enhancing the effectiveness of the peripheral skeletal muscle pump, according to Dr. Grubb. By Deborah Kotz. As a consumer health reporter, I assume I’ve heard of every health […]
Posted on July 9, 2014
Wendy Pitts is an artist who stays positive while juggling 4 kids, a business and Ehlers-Danlos Syndrome. INSPIRING residents living with long-term conditions and disabilities have been showing off their works of art after winning a competition to tell their story through a picture. Organised by Warrington CCG, judges from the health board’s quality committee had the difficult […]
Posted on July 8, 2014
Chloe is determined that EDS/HMS won’t define her life. She continues to pursue her music, and debuted her first album this year, alongside fellow musician Steve Jones! Chloe’s community will host a musical extravaganza benefit to help with her Ehlers Danlos/Hypermobility Syndrome. By Tara Cox. “A WEST Dorset UK community is rallying round to help chronically ill mum […]
Posted on July 7, 2014
Veronica Foale says Ehlers-Danlos Syndrome has not stopped her from having a good quality-of-life. By Fred Hooper. When Veronica Foale was diagnosed with a genetic disorder she was also told there was a 50 per cent chance she would pass this condition on to her children. She already had two children when she found […]