Archive for the ‘Community’ Category
Posted on May 1, 2016
Available now to print through Vistaprint! This new EDS brochure is designed for general awareness of EDS. It’s suitable for doctors, teachers, and relatives who just don’t “get it”.
Posted on April 21, 2016
This website and its free programs are dedicated to the memory of Carol and thousands like her – who suffer from undiagnosed Ehlers-Danlos… We were married for 41 years. You’d think that after all of that time you would know everything there was to know about a person. – I knew Carol was a […]
Posted on April 10, 2016
Colorado EDS Awareness Month Proclamation. Justin and Nancy, leaders of the Denver EDS Support Group, received their Proclamation. There is still time to get your Ehlers-Danlos Awareness Month Proclamation request sent to your state or local officials. . . Proclamation sample. http://www.ehlersdanlosnetwork.org/May.html . . Proclamation Contact information Click here for a spreadsheet with contact information […]
Posted on April 10, 2016
Alaska Ehlers-Danlos Syndrome Awareness Month Coloring Competition. Start Date: May 1, 2016 at 12:00 am End Date: May 31, 2016 at 11:59 pm Rules: Attached you will find a picture of a zebra bust that was designed and drawn by the artist Katie Zamudio, Doodlebug Coloring Books. Starting May 1, 2016 at 12:00 am […]
Posted on April 4, 2016
This month is Ehlers-Danlos syndrome awareness month. It’s a connective tissue disorder with no cure. Dr. Rob is “in the house” to give us details on how we can help those suffering from this often-painful condition. Andrea Julian, a leader of the Dayton Ohio EDS Support Group is interviewed. Click here for the Dayton, Ohio EDS […]
Posted on March 28, 2016
Dr. Neil Schechter presented “Chronic Pain in Children and Adolescents with EDS”.
Posted on February 24, 2016
The Hole in the Wall Gang will be hosting a Rare Disease Summer Family Camp June 2-5 at Hole in the Wall. Children with Ehler’s Danlos and their families will be eligible for this session. In addition we also will host a General Family Weekend in the spring and in the fall (4/22-24 and 10/21-23) that […]
Posted on February 22, 2016
“Issues with my Tissues” follows the epic emotional journey of Lara Bloom, and Ehlers-Danlos Syndrome. We appreciate your Facebook Shares. Likes and comments
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