Articles
Posted on January 31, 2021
Purpose of This Survey to better understand people’s needs for travel support services and other services that aim to reduce the burdens of participating in a clinical trial. (It’s important to note that these services are not funded by patients, they’re always funded by Sponsors of clinical trials and provided to patients at no cost). […]
Posted on December 1, 2020
EDS patients may be genetically high-responders to laser photobiomodulation pain treatment. 85% of 45 EDS patients have very good or excellent pain reduction from laser photobiomodulation in our clinic. In one EDS patient, we have been able to reverse incipient gastrocnemius separation from its tendon, which previously required the patient to have surgery. All of […]
Posted on November 14, 2020
Authors Joanne C Demmler1, Mark D Atkinson1, Emma J Reinhold2, Ernest Choy3, Ronan A Lyons1, Sinead T Brophy1 Author affiliations Swansea University Medical School, Swansea University, Swansea, UK Royal College of General Practitioners, London, UK School of Medicine, Cardiff University, Cardiff, UK Correspondence […]
Posted on November 12, 2020
Now available at www.bodysupportstore.com — Zebra Shirts for awareness are only $10 each! This is the perfect way to communicate our EDS Awareness message during our May EDS Awareness month activities or the EDS conference in September!
Posted on October 24, 2020
Created by Lori Zaino This article was reprinted with permission from this author . The complete article is available at this link Covered in this guide The lowdown on emotional support dogs: what they are, how they differ from service dogs, who should get one, and how to certify them. Breeds/types of dogs that make […]
Posted on September 30, 2020
Teenage Suicide A leading cause of death Published with the permission of D’AMore Mental Health Contents Is suicide a side effect of mental illness or addiction? Why do teens and young adults want to commit suicide? Does Social Media contribute to suicidality? Suicide and LGBT Youth Is self-harm a sign of suicidal ideation? What […]
Posted on August 24, 2020
New Feature-Length Ehlers-Danlos Documentary Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome Click here for the link to the […]
Posted on July 28, 2020
Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.
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