Webinars
Webinar: “EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”
June 13, 2020
Clair Francomano MD
“EDS and Hypermobility Spectrum Disorders – Overview of Diagnosis and Management”
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“A Guide to Medical Fundraising”
June 9, 2020
Sonny Mullen
“A Guide to Medical Fundraising”
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New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’
May 15, 2020
Karina Sturm
New Feature-Length Ehlers-Danlos Documentary
“We Are Visible”
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PODCAST – Karina Sturm the director of ‘We are Visible”
December 21, 2019
Podcast Interview with Karina Strum
‘We are Visible’ Podcast Interview
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“Starting and Maintaining a Successful Support Group”
June 5, 2019
Andrea Julian
“Starting and Maintaining a Successful Support Group”
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“Organizing and Managing your Facebook and Social Media”
May 29, 2019
Maria Dastur, M.B.A.
Organizing and Managing your Facebook and Social Media
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Webinar – Sleep Disorders in EDS
March 29, 2019
Alan G. Pocinki M.D.
Sleep Disorders in EDS
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Webinar – The Consequences and Resolution of Joint Instabilities in Hypermobile EDS
January 28, 2019
Ross A. Hauser, MD
Consequences and Resolution of Joint Instabilities in H- EDS
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