hiki-app-Y4Pz7zF-dJQ-unsplash – EDSAwareness.com - EDSAwareness.com

Home
About Us
What is EDS?
Team
Join Our Team
Contact Us

Resources
Webinars
Newsletter
Articles
- Newsletter Archive
Podcast
Films

hiki-app-Y4Pz7zF-dJQ-unsplash

Leave a Reply

Click here to cancel reply.

Name (required)

Mail (will not be published) (required)

Website

Comments

Δ

Popular Posts

EDS Support Group Directory in Development at www.EDSawareness.com

Reducing Pain and Effort in the Kitchen

Ehlers-Danlos Syndrome May Increase Susceptibility to Infections

EDS, POTS and MCAS Linked by One Gene Mutation

Billie Eilish, a woman with black shoulder-long hair all dressed in black.

Popular People With Ehlers-Danlos Syndrome

Categories

Popular

Article Topics

Dealing with EDS
Managing Ehlers-Danlos
Hypermobility
Pain of EDS
Kids with Ehlers-Danlos
Research
EDS updates
family
EDS
hEDS
film
Science
EDS Documentary
documentary
pain

EDS Awareness is the primary initiative of Chronic Pain Partners, a patient-led nonprofit and a trusted voice in the Ehlers-Danlos community since 2011. Our mission is not only to raise awareness of Ehlers-Danlos Syndromes, but to support patients in navigating life after diagnosis.

Through our articles, newsletters, multimedia, and community storytelling, we help patients, medical professionals, and the broader community better understand EDS and its wide variety of comorbid conditions. By translating emerging research and connecting patients with experts, we turn complex medical information into clear, actionable knowledge that patients can use. We also offer practical guidance for everyday life with EDS, from addressing medical trauma to identifying the best supportive tools.

At EDS Awareness, our goal is to ensure every patient has the support and resources they deserve to live a full and active life with EDS.

Chronic Pain Partners, a US-based non-profit 501(c)(3) organization.

Support EDS Awareness

Quick links

Home
Team
Contact
About EDS
Policy

Social Links

Support EDS Awareness

© 2026 EDS Awareness. All rights reserved | Privacy Policy