Archive for the ‘EDS Diagnosis’ Category

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This Young Woman Dislocates Her Shoulder Up to 10 Times a Day By Just Sneezing!

Posted on January 13, 2013

Lauren has not been diagnosed with EDS yet. But she has many of the symtoms.  Trying to work with this disorder can be difficult. “- This Genetic condition means  Lauren’s collagen is too weak to support her joints – She goes to work  at McDonalds even when she is in pain – Doctors dislocated Lauren’s […]

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A Dog with Ehlers-Danlos Syndrome?

Posted on January 12, 2013

This is an incredible story of a Dog with Ehlers-danlos Syndrome? The dog was diagnosed with EDS by Dr. Marianne E. Bailey who is a veterinarian at South Arundel Veterinary Hospital in Edgewater, MD. “My veterinarian says he thinks my dog may have Ehler Danlos Syndrome. She has really stretchy skin and, when she gets a cut, it […]

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Poppy Urgently Needs Her Intestines and Stomach Replaced

Posted on January 8, 2013

What an incredible story of a 5 year old girl who got to come home from the hospital for Christmas. How difficult EDS can be to even the youngest of our community!   By Alex Ross                                                                    Published on Friday 21 December 2012 09:22        The Gazette “A BATTLING youngster is hoping to spend Christmas at home […]

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Welsh Government is Starting to Pay for EDS Treatment

Posted on January 6, 2013

It has been difficult in many countries, including the US, to get insurance and government agencies to pay for Ehlers-Danlos Syndrome treatment. Many doctors do not understand this disorder and most do not know how to treat this condition. This is a story of a successful result of a public appeal for a teenager with this rare […]

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This Young Woman Dislocates Her Shoulder Up to 10 Times a Day By Just Sneezing!

Posted on January 1, 2013

Lauren has not been diagnosed with EDS yet. But she has many of the symtoms.  Trying to work with this disorder can be difficult. “- This Genetic condition means  Lauren’s collagen is too weak to support her joints – She goes to work  at McDonalds even when she is in pain – Doctors dislocated Lauren’s […]

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Diagnosed with EDS, Now What?

Posted on September 7, 2012

By Amy L. Schulze “This is a set of advice that was compiled by a group of patients. It is meant to help with issues other than the formal medical advice you will receive from various doctors and therapists. Do not take this advice for something other than friendly advice from those that have more […]

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Ehlers-Danlos Syndrome Commonly Associated Health Problems

Posted on September 6, 2012

This is an interesting summary of various health problems associated with EDS “Ehlers Danlos Syndrome (EDS) is a group of inherited disorders that affects the production of collagen in the body. Textbook symptoms may include problems such as easily bruising or scarring, joints that are hypermobile, skin that is very elastic and weak tissue throughout […]

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Elhers-Danlos Syndrome and its Diagnosis

Posted on July 28, 2012

Ehlers-Danlos Syndrome is a painful disability that requires a different lifestyle. The first challenge is the diagnosis. Ehlers-Danlos Syndrome is actually a group of genetic disorders that cause problems with a patient’s connective tissues, according to Dr. Salman Kirmani, an expert on EDS at the Mayo Clinic. Collagen and other proteins in the connective tissues […]

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