Survey

Four colorful walking canes decorated with charms lean together in a corner, used as mobility aids for someone with Ehlers-Danlos syndrome (EDS).

What Helped You After an EDS Diagnosis?

Being diagnosed with Ehlers-Danlos syndrome can feel like a major feat to some. Maybe you’ve been advocating for a diagnosis for a while, or maybe this was a shock to you. In both scenarios, sometimes you get to the other side of the diagnostic process and realize it doesn’t just stop there. Now is the […]

Dr. Wolf, a woman with short, curly brown hair, black glasses and a yellow face mask.

EDSed Episode 4: Dr. Jacqueline Wolf on GI symptoms & Endometriosis

EDSed is our new series of full-length interviews with international EDS experts. These educational interview series with journalistic (news) quality is complementary to our webinar recordings and another free resource we provide for our community. All films are produced by journalist and We Are Visible filmmaker Karina Sturm and sponsored by Chronic Pain Partners. You can […]