Survey About Support in Clinical Trials – Rare Disease Patients/Caregivers- Chance to win gift cards!!
Purpose of This Survey
to better understand people’s needs for travel support services and other services that aim to reduce the burdens of participating in a clinical trial. (It’s important to note that these services are not funded by patients, they’re always funded by Sponsors of clinical trials and provided to patients at no cost).
Who is the Survey For
Anyone who is affected by rare disease, either as a patient, caregiver or family member of someone affected by rare disease.
Anyone who would like to answer the survey can do so through this link: https://s.surveyplanet.com/LdsdcEEDo
How Long Does it Take
Approximately 10 minutes. We promise.
Everyone who completes the survey will be entered in a draw to win one of the following prizes:
- $100 gift card for themselves and a $500 donation to a Patient Organization of their choice (1 winner)
- $100 gift card for themselves (3 winners)
The draw will take place within 10 working days of the closing date of the survey. How Long is the Survey Open
Survey is open until Thursday, February 18th.
What will be done with the results of this survey
We plan to publish the results of the survey along with the results of several focus groups we have conducted in January 2021 in a whitepaper/report and to share the results with academia, industry and Patient Organizations to raise awareness and amplify the voices of the rare disease community. Both PRA and Scout plan to publish a whitepaper and share it widely with our networks.
We will share a copy of the whitepaper/report with your organization as well! Suggested Wording for Social Media
If you would like to share the link to this survey through your Organizations social media channels, in case it is helpful we have prepared the following suggested wording:
#RareDisease #Advocates @PRAHSciences and @ScoutClinical have teamed up learn what SUPPORT you need to participate in #clinical trials! Take this short survey by February 18th & be entered in a #PrizeDraw https://s.surveyplanet.com/LdsdcEEDo