If you are a student or a parent of a child who needs extra support for their illness and/or disability accommodations for school or to enter and succeed in grammar school up to college, this is for you and just in time with our list of helpful resources. 

For Students K-12

• Read our resourceful guide for K-12 parents of kids with EDS 
• Share with your student our article with 4 tips for students written by students on navigating school with EDS

Need to Know Rights and Terminology:

• Learn your rights from the ADA Act applicable only in the US
• Know what an IEP is and other terms

Understand the differences between IDEA and Section 504

Get Ideas for Accommodations & Write Letters Requesting Accommodations:

•  From the Parent Center Hub and more ideas for school accommodations
  • Ideas for rising seniors to get ready for college during the end of high school when they have disabilities
  • Sample letters requesting accommodations:
    •  Sample Accommodations Letter from Your Doctor/Clinician – Template – Google Docs

• • •  Sample Accommodations Letter Request for College Professor -Template – Google Docs

Parents’ Tools:

• Review the recent medical research report on the lived experiences of parents of EDS children
• Learn how to navigate the transition from pediatric to adult care in rare diseases
• Save money pre-tax with a US government ABLE disability savings account for kids under 26 

More Resources:

• Access and share the teacher’s School Kit
• Accommodations on College Board Exams from the College Board
• Association on Higher Education And Disability (AHEAD)
• Higher Education — Generation Patient
• Postsecondary Institutions and Students with Disabilities from the ADA National Network
• Disability Rights Legal Center (DRLC) – Free disability-related legal advice
• Benefits.gov   

If you have other great resources and ideas to share, please add them to the comments.