Marfans
Dr. Forest Tennant webinar on “Centralized Intractable Pain in Ehlers-Danlos” – Recording Available
Watch this FREE online learning session! Dr. Forest Tennant presents “Centralized Pain in EDS”. Since 1975, his passion is to provide guidance and hope to chronic pain patients.
Dr. Mark Lavallee webinar “Exercise is Medicine” – Video Recording
Watch this FREE online learning session! Mark E. Lavallee, M.D presents “Exercise is Medicine – especially for Ehlers-Danlos”. He has EDS, classical type and has lectured at many EDNF conferences.
A Diagnostic Test for Marfan Syndrome and Other Connective Tissue Disorders
In this VIDEO, Dr. Jeff Milunsky describes how a new DNA chip test, CONNECT1, detects multiple mutations that are diagnostic for connective tissue disorders such as Marfan, Ehlers-Danlos, and Loeys-Dietz syndromes. Dr. Jeff Milunsky is the Co-director of the Center for Human Genetics, Inc. This presentation was given in August 2014 to the Massachusetts Chapter […]
Next-Generation Sequencing (NGS), Faster and More Economical for EDS & Marfans
Better, faster and more economical methods are emerging to analyze the genetic factors affecting our health. “Genetic factors play some part in nearly all health conditions and characteristics. However, there are some conditions in which these factors are almost fully responsible for causing the condition. These are called genetic disorders, or inherited […]
Innovative Blood Test for Vascular Ehlers-Danlos Syndrome
Researchers are making some progress discovering a potential biomarker for aortic dissections related to Vascular Ehlers-Danlos Syndrome. Posted by: Anna Ishibashi “Researchers from ShrinersHospital for Children, OregonHealth & ScienceUniversity, Baylor College of Medicine and the Texas Heart Institute, have demonstrated for the first time that fibrillin-1 in the blood stream could be a biomarker to diagnose aortic aneurysms and aortic dissections. […]
