Archive for the ‘Pain’ Category

Ehlers-Danlos & the “Spoon Theory” get attention on BBC News

Posted on June 21, 2013

Many EDSers use the “Spoon Theory” to explain their fatigue and limitations due to the acute-chronic pain cycle.  BBC  News presents a series on “insights into disabled life” which shares the “Spoon Theory” with the public audience.  We hope this will increase awareness & understanding of  the compromises we EDSers must make to manage Ehlers-Danlos […]

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Attention Doctors: An EDS Patient’s Bill of Rights

Posted on June 6, 2013

Many EDS patients are struggling to get their doctors to understand their condition.  This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By     an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]

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Proper Brace or Splint Usage Can Protect Joints

Posted on June 2, 2013

Blogger “purlbeadsjo“ presents an interesting discussion, with illustrations of various braces and splints she uses for her body support. “I am one of those EDSers who has a brace for almost every body part! (I’m missing a few) The 1st question that most bendie’s will have is how on earth did I get them all off […]

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“My Knees…You Can Dislocate Them by Touching Them with a Finger”

Posted on May 30, 2013

Davina is telling her story, and explaining her struggles with Ehlers-Danlos Syndrome. She wants to promote EDS Awareness during this month of May.  By LYNN SCHMIDT   Staff Writer  Lancaster Online “In middle school, Davina Shober, 20, of Lancaster, says, she would miss  months of school at a time from severe abdominal and gastrointestinal problems.  Her senior […]

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Hypnotherapy May Help With Joint Pain, Sleep

Posted on May 29, 2013

Angela Woods is looking for different methods to relieve pain and improve sleep.   By Shawn Conner, Vancouver Sun Photograph by: Ward Perrin Ward Perrin , Vancouver Sun “Over the years, Angela Woods has tried “just about everything” to manage the pain caused by Ehlers-Danlos syndrome. The retired commercial radio inspector has tried physiotherapy, massage […]

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Welsh Government is Starting to Pay for EDS Treatment

Posted on January 7, 2013

It has been difficult in many countries, including the US, to get insurance and government agencies to pay for Ehlers-Danlos Syndrome treatment. Many doctors do not understand this disorder and most do not know how to treat this condition. This is a story of a successful result of a public appeal for a teenager with […]

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Hamilton woman seeks Treatment in the US for a Painful Condition

Posted on January 2, 2013

  Brittinay is another Canadian who is not getting the treatment she needs for her Ehlers-Danlos Syndrome disorder.  She is seeking more treatment in the US. “Brittany Crichton looks battered. Bruises dot the 23-year-old Hamilton woman’s body. She has a pronounced limp. Her shoulders dislocate so often that she puts them back in herself. Clumps […]

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Talking to Someone with a Chronic Illness

Posted on October 15, 2012

  Editor’s note: Lisa Copen is the founder of Invisible Illness Awareness Week. She has lived with rheumatoid arthritis for nearly 20 years. She spends her time encouraging others who live with chronic illness or pain through her organization, Rest Ministries. (CNN) — When people we care about are in pain, we want to offer […]

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