Pain

EDS Awareness Educational Series – RECORDING AVAILABLE

  EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke  about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders.  Don’t miss this event!     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording CLICK HERE for the slides […]

Free Webinar: Dr. Chopra presents EDS Pain Management (Part 1 of 2)

EDS Awareness invites you to watch this FREE webinar presented by Dr. Pradeep Chopra on EDS Pain Management. (Part 1)  A recording is available for replay. Receive INVITATIONS for upcoming FREE webinars by signing up for the “FREE Report” on the homepage. Or click HERE.  CLICK HERE for the link to the recording of this webinar session.  CLICK HERE […]

CrowdMed.com Website Helps Solve “Medical Mysteries”

CrowdMed.com helps patients collaborate with others as they explore rare medical conditions, such as Ehlers-Danlos Syndrome. Many have received suggestions that they can research and take to their doctor. Always consult your doctor first. BY: Kate Merrill NEWBURYPORT (CBS) – “Only a few years ago dancing, art, and music came easy to Diana Cleaveland. Now the 51-year-old […]

Ayiana Lives With the Constant Pain That She Endures Each Day

This courageous young lady has a faith in God that helps her manage her pain from Ehlers-Danlos Syndrome. By: Daniel Elizondo Silsbee, TX Living life as a vibrant 14-year old teen is the epitome of life. Football games, birthday parties, hanging out with friends. It’s that age when you are on the brink of maturing […]

Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

Discovery Health Channel: Ehlers-Danlos Syndrome

Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face.  It addresses EDS Hypermobility and Vascular types.

Doctor Speaker Series

EDSawareness.com is excited to be offering this Doctor Speaker Series to our EDS Membership. We are limited in the number of openings so please dial in early (by telephone only) to attend the program. The sessions will be the 1st and 3rd Wednesdays at 9:00 pm EST. Our speaker for September 18 was Dr. Stephane Treyvaud. Dr. Treyvaud is an adult, […]

Attention Doctors: An EDS Patient’s Bill of Rights

Many EDS patients are struggling to get their doctors to understand their condition.  This “Bill of Rights” is a tool that may help EDSers communicate with doctors. By     an_angel_with_wings “The purpose of this Bill of Rights is not to be combative or argumentative. I have experienced all of these things during the time that my […]