Archive for the ‘Pain’ Category

Discovery Health Channel: Ehlers-Danlos Syndrome

Posted on November 1, 2013

Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face.  It addresses EDS Hypermobility and Vascular types.

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Doctor Speaker Series

Posted on September 18, 2013

EDSawareness.com is excited to be offering this Doctor Speaker Series to our EDS Membership. We are limited in the number of openings so please dial in early (by telephone only) to attend the program. The sessions will be the 1st and 3rd Wednesdays at 9:00 pm EST. Our speaker for September 18 was Dr. Stephane Treyvaud. Dr. Treyvaud is an adult, […]

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Listen to Radio Talk Show on “EDS Pain Management”

Posted on September 14, 2013

EDS Awareness was invited to participate in Radio talk show about EDS Pain Management. It aired on Monday night, 7/22/2013. (Click on the title above to listen to a replay of the interview.)  You will also learn about the EDS Awareness Support Group program. Click here  to listen to the radio show (after commercial). Enjoy the program. We appreciate your Likes […]

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Watch this Video on Pain Management for Ehlers-Danlos Syndrome (EDS)

Posted on August 24, 2013

Watch this MUST-SEE video presentation from the Cincinnati Children’s Hospital discussing chronic pain management for Ehlers-Danlos Syndrome. This recent “online Q & A” event was held Tuesday, 8/20/13. Their primary focus is pediatrics, but the information will be helpful to all patients. Click here to start the video program About This Session Cincinnati Children’s Hospital Medical Center […]

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Cincinnati Children’s Hospital Hosts Ehlers-Danlos Pain Management Q & A

Posted on August 16, 2013

Cincinnati Children’s Hospital has helped patients like Hallie to reduce the pain associated with Ehlers-Danlos Syndrome. The hospital is hosting a live, online Q&A session on pain management on August 20 from 7-8 pm EST. By:Kenneth Goldschneider, MD, FAAP “You might have seen Hallie’s edition of Tell Me a Story. Her journey with pain as a patient […]

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Lauren describes her Ehlers-Danlos symptoms

Posted on June 27, 2013

Type 3 Ehlers Danlos Syndrome Written By:  Lcervetto Hi I’m Lauren I’m not looking for sympathy just understanding. I was diagnosed with EDS at age 15. I would always get hurt really easily and would always complain about my joints hurting. I enjoyed running and that kept me in pretty good shape but at age […]

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Subluxating and Dislocating Joints

Posted on June 26, 2013

Posted by Springsong This is a difficult issue to deal with for those with Ehlers-Danlos Syndrome. “In the past I was very naïve over subluxation & dislocation of joints thinking that it would only happen in cases of extreme injury, boy was I wrong [sighs].  My first instance of dislocation occurred around my teens, I […]

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Fatigue in Ehlers Danlos Syndrome

Posted on June 23, 2013

These parents of children with EDS are empowering them with the confidence and understanding to develop their own independence. “Does Ehlers Danlos Syndrome Make You Tired?” by Jenny; Cheetahs In My Shoes & Just Photos By Me | “I was going to call this post “Fatigue in Ehlers Danlos Syndrome” but that sounds a bit grown up […]

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