Pain
A Diagnostic Test for Marfan Syndrome and Other Connective Tissue Disorders
In this VIDEO, Dr. Jeff Milunsky describes how a new DNA chip test, CONNECT1, detects multiple mutations that are diagnostic for connective tissue disorders such as Marfan, Ehlers-Danlos, and Loeys-Dietz syndromes. Dr. Jeff Milunsky is the Co-director of the Center for Human Genetics, Inc. This presentation was given in August 2014 to the Massachusetts Chapter […]
Dr. Peter Rowe – “Is The Physical Examination Normal in Chronic Fatigue Syndrome?”
Dr. Peter Rowe discusses 3 areas of dysfunction often found in Chronic Fatigue Syndrome patients —circulatory disturbances, joint hypermobility, and movement restrictions. These appear to have some commonality with Ehlers-Danlos Syndrome. Fortunately, recent research is beginning to change the previous misperception that there are “no abnormal physical findings with CFS” and refute that it has a “psychosomatic origin”. “In […]
EDS Awareness Educational Series – RECORDING AVAILABLE
EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders. Don’t miss this event! Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides […]
Free Webinar: Dr. Chopra presents EDS Pain Management (Part 1 of 2)
EDS Awareness invites you to watch this FREE webinar presented by Dr. Pradeep Chopra on EDS Pain Management. (Part 1) A recording is available for replay. Receive INVITATIONS for upcoming FREE webinars by signing up for the “FREE Report” on the homepage. Or click HERE. CLICK HERE for the link to the recording of this webinar session. CLICK HERE […]
CrowdMed.com Website Helps Solve “Medical Mysteries”
CrowdMed.com helps patients collaborate with others as they explore rare medical conditions, such as Ehlers-Danlos Syndrome. Many have received suggestions that they can research and take to their doctor. Always consult your doctor first. BY: Kate Merrill NEWBURYPORT (CBS) – “Only a few years ago dancing, art, and music came easy to Diana Cleaveland. Now the 51-year-old […]
Ayiana Lives With the Constant Pain That She Endures Each Day
This courageous young lady has a faith in God that helps her manage her pain from Ehlers-Danlos Syndrome. By: Daniel Elizondo Silsbee, TX Living life as a vibrant 14-year old teen is the epitome of life. Football games, birthday parties, hanging out with friends. It’s that age when you are on the brink of maturing […]
Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems
Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life. She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]
Discovery Health Channel: Ehlers-Danlos Syndrome
Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face. It addresses EDS Hypermobility and Vascular types.
