Archive for the ‘Pain’ Category

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Dr. Peter Rowe – “Is The Physical Examination Normal in Chronic Fatigue Syndrome?”

Posted on October 24, 2014

Dr. Peter Rowe discusses 3 areas of dysfunction often found in Chronic Fatigue Syndrome patients —circulatory disturbances, joint hypermobility, and movement restrictions. These appear to have some commonality with Ehlers-Danlos Syndrome.  Fortunately, recent research is beginning to change the previous misperception that there are “no abnormal physical findings with CFS” and refute that it has a “psychosomatic origin”.   “In […]

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EDS Awareness Educational Series – RECORDING AVAILABLE

Posted on July 2, 2014

  EDS Awareness invites you listen to a replay of a FREE online learning session! On July 2nd, Joel Lamoure spoke  about medication, pain, pitfalls and challenges facing those with EDS and other connective tissue disorders.  Don’t miss this event!     Sponsored by www.bodysupportstore.com    CLICK HERE for a link to the recording CLICK HERE for the slides […]

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Free Webinar: Dr. Chopra presents EDS Pain Management (Part 1 of 2)

Posted on March 18, 2014

EDS Awareness invites you to watch this FREE webinar presented by Dr. Pradeep Chopra on EDS Pain Management. (Part 1)  A recording is available for replay. Receive INVITATIONS for upcoming FREE webinars by signing up for the “FREE Report” on the homepage. Or click HERE.  CLICK HERE for the link to the recording of this webinar session.  CLICK HERE […]

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CrowdMed.com Website Helps Solve “Medical Mysteries”

Posted on February 7, 2014

CrowdMed.com helps patients collaborate with others as they explore rare medical conditions, such as Ehlers-Danlos Syndrome. Many have received suggestions that they can research and take to their doctor. Always consult your doctor first. BY: Kate Merrill NEWBURYPORT (CBS) – “Only a few years ago dancing, art, and music came easy to Diana Cleaveland. Now the 51-year-old […]

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Ayiana Lives With the Constant Pain That She Endures Each Day

Posted on November 26, 2013

This courageous young lady has a faith in God that helps her manage her pain from Ehlers-Danlos Syndrome. By: Daniel Elizondo Silsbee, TX Living life as a vibrant 14-year old teen is the epitome of life. Football games, birthday parties, hanging out with friends. It’s that age when you are on the brink of maturing […]

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Dr. Francomano Video: Ehlers-Danlos’ Affect on Multiple Body Systems

Posted on November 13, 2013

Don’t miss these videos! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life.  She describes how EDS affects multiple body systems–musculoskeletal, neurological, dermatological, cardiovascular, gastrointestinal, and immunological. She discusses pain, fatigue, autonomic dysfunction, and much more. Chiari, Fibromuscular Dysplasia, CVID, and Mast Cell Activation Disorder are also mentioned. […]

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Discovery Health Channel: Ehlers-Danlos Syndrome

Posted on November 1, 2013

Discovery Health Channel presents an episode about Ehlers-Danlos Syndrome. This TV segment portrays Alberto Friedman’s family of EDSers and describes the challenges they face.  It addresses EDS Hypermobility and Vascular types.

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Doctor Speaker Series

Posted on September 18, 2013

EDSawareness.com is excited to be offering this Doctor Speaker Series to our EDS Membership. We are limited in the number of openings so please dial in early (by telephone only) to attend the program. The sessions will be the 1st and 3rd Wednesdays at 9:00 pm EST. Our speaker for September 18 was Dr. Stephane Treyvaud. Dr. Treyvaud is an adult, […]

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