Headaches

Illustrated cover image titled “Our Team’s Favorite Go-To Support Aids for EDS/HSD,” featuring sketches of a recumbent bike, shoulder brace, Thera Cane massage tool, SmartCRUTCH forearm crutch, and a McKenzie neck roll pillow arranged across a white background.

Up Close and Personal: Our Team’s Favorite Go-To Support Aids for EDS/HSD

This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). While these aids might be what work for us personally, we hope they offer inspiration and ideas to help you live your life to the fullest with EDS/HSD.

Cerebral Venous Outflow Disorders: What it is and Why EDS Patients Should Know About it

Cerebral venous outflow disorders describes a spectrum of conditions related to issues with how fluid drains from the brain.Experts are observing a connection between connective tissue disorders (like hypermobile EDS) and cerebral venous outflow disorders. Cerebral venous outflow disorders can cause pressure headaches (that often worsen when lying flat), dizziness, pulsatile tinnitus (a rare vascular form of tinnitus), neck pain, tenderness at the base of skull, vision disturbances, ‘brain fog’, and cognitive dysfunction. Cerebral venous outflow disorder may look different when it presents in individuals with connective tissue disorders than in individuals without, creating diagnostic challenges.

A black and white image of a small table near a wooden wall. The table is stacked haphazardly with books and papers.

Research Round-Up, Edition One

Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]

storm clouds coming

Got the Barometric Blues?

Strategies For Managing the Impact of Changing Weather Patterns Tomorrow’s weather forecast for your joints? Cloudy with a chance of pain. There’s a long-held scientific belief that worsening weather can increase aches in your joints, according to the Cleveland Clinic, especially for conditions like arthritis and fibromyalgia. We don’t really fully understand why, but for […]

Dr. John Mitakides Webinar: “Musculoskeletal Headaches in EDS” – Recording Available

Watch this FREE online learning session!    Dr. John Mitakides presents “Musculoskeletal Headaches in EDS”.   Sponsored by www.bodysupportstore.com    TOPIC: “Musculoskeletal Headaches in EDS”   PRESENTER: Dr. John Mitakides   Click here for the recording of this presentation Click here for the slides used for this presentation About our speaker: Dr. John Mitakides CLICK HERE for more […]