July 9, 2018 by Heather Bauders, Senior Public Relations Specialist Every day of restored health is a blessing for Christina Corturillo and her mom, Kathy. What do you do when you go from being an active kid to unable to walk? What do you do when doctors think the problem is mental, but you know […]
Scientists at the National Institutes of Health have identified a genetic explanation for a syndrome characterized by multiple frustrating and difficult-to-treat symptoms, including dizziness and lightheadedness, skin flushing and itching, gastrointestinal complaints, chronic pain, and bone and joint problems. Some people who experience these diverse symptoms have elevated levels of tryptase — a protein in […]
EDS Awareness invites you to watch this FREE webinar recording! Sponsored by: www.bodysupportstore.com Dr. Henry Burkholder presents “Postural Orthostatic Tachycardia Syndrome (POTs) and EDS”. He is a Pediatric Cardiologist and presenter at the 2014 EDNF Conference in Houston, TX. PRESENTER: Dr. Henry Burkholder, Pediatric Cardiologist TOPIC: Postural Orthostatic […]
Listen to this webinar about EDS and POTS. Also, watch another video of Dr. Rowe’s webinar for EDS Awareness Educational Series presented in July 2014.
Cleveland Clinic webinar Date: Wednesday, November 12, 2014 Time: 12:00 PM (EST) (See link at the bottom of this article to register) Autonomic disorders are neurological diseases which can affect the cardiovascular system. Syncope, Dysautonomia and POTs (Postural Tachycardia Syndrome) are the most common forms. Over one million Americans are impacted with a primary autonomic […]
EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS. Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com PRESENTER: Alan Pocinki, MD, FACP TOPIC: Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue Click here for the recording of the educational program Click here […]
EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS. Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides used in this presentation PRESENTER: Dr. Peter Rowe is a […]
POTS experts, Dr. Blair Grubb and Dr. Geoffrey Heyer, explain the symptoms and treatments. Studies have indicated that 1 in 4 of those diagnosed with POTS are disabled. Exercise helps by enhancing the effectiveness of the peripheral skeletal muscle pump, according to Dr. Grubb. By Deborah Kotz. As a consumer health reporter, I assume I’ve heard of every health […]
Ehlers-Danlos Syndrome May Increase Susceptibility to Infections
EDS, POTS and MCAS Linked by One Gene Mutation
Popular People With Ehlers-Danlos Syndrome
In memory of John Ferman, Founder and President of Chronic Pain Partners / EDS Awareness
EDS Physical Therapy Book & Free Webinar: “Living Life to the Fullest with Ehlers-Danlos Syndrome”