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Free Webinar: “Allergies & Mast Cell Activation Syndrome in EDS Patients” Part 1- Recording Available
EDS Awareness invites you to watch this FREE online learning session! On September 3, Dr. Anne Maitland’s presentation focused on Allergies & Mast Cell Activation Syndrome in EDS Patients. Sponsored by www.bodysupportstore.com WHAT: “ EDS Awareness Educational Series” – a webinar program hosted by EDSawareness.com PRESENTER: Anne Maitland, MD, PhD – Director for Comprehensive Allergy & Asthma Care and the new Mast Cell Activation […]
Maddison Parker to Meet Australian Prime Minister to Discuss Ehlers Danlos Syndrome Research
Maddison Parker is looking forward to having five minutes with Australian Prime Minister Tony Abbott to talk about Ehlers-Danlos Syndrome. Her persistence seems to be paying off – she is awaiting a date and time to be confirmed for the meeting. “MADDISON Parker is one step closer to getting five minutes with Prime Minister Tony Abbott. […]
Webinar by Dr. Pocinki – Recording Available
EDS Awareness invites you to listen to Dr. Alan Pocinki’s presentation about Chronic Pain, Poor Sleep, Depression, and Fatigue in EDS. Dysautonomia was also addressed in his lecture. Sponsored by www.bodysupportstore.com PRESENTER: Alan Pocinki, MD, FACP TOPIC: Breaking the cycle of Chronic Pain, Poor Sleep, Depression, and Fatigue Click here for the recording of the educational program Click here […]
How to Help Your Ehlers-Danlos Caregiver
Caregivers are the unsung heroes in the life of the chronically ill. They offer critical support for patients living with Ehlers Danlos Syndrome. Learn 7 practical ways you can appreciate your caregiver and help them manage their additional responsibilities. by Toni Bernhard, J.D. I know how fortunate I am to have a loving caregiver. Although he may not see it this way, […]
“EDS Awareness Educational Series” Webinar – Recording Available
EDS Awareness invites you to listen to a FREE online learning session! On August 6, Dr. Derek Neilson’s presented EDS Hypermobility Type and what is needed to change the perception of this condition. Sponsored by www.bodysupportstore.com WHAT: ““EDS Awareness Educational Series” – a webinar program hosted by EDSawareness.com PRESENTER: Dr. Derek Neilson – Assistant Professor […]
Webinar by Dr. Peter Rowe – Recording available
EDS Awareness invites you to listen to a replay of this FREE online learning session! Dr. Peter Rowe spoke about managing Orthostatic Intolerance in EDS. Sponsored by www.bodysupportstore.com CLICK HERE for a link to the recording CLICK HERE for the slides used in this presentation PRESENTER: Dr. Peter Rowe is a […]
The Directory for EDS Support Groups
Watch the video tour of the EDSawareness.com site in 2012: EDSawareness.com celebrated its 2nd year anniversary in July 2014 by sponsoring a booth at the EDNF Learning Conference in Houston TX. We have come a long way in just two short years! This video shows the launching of EDSawareness.com at the 2012 Cincinnati EDNF Learning Conference! We welcome Comments […]
Exercise and Lifestyle Therapies are Key to Managing POTS
POTS experts, Dr. Blair Grubb and Dr. Geoffrey Heyer, explain the symptoms and treatments. Studies have indicated that 1 in 4 of those diagnosed with POTS are disabled. Exercise helps by enhancing the effectiveness of the peripheral skeletal muscle pump, according to Dr. Grubb. By Deborah Kotz. As a consumer health reporter, I assume I’ve heard of every health […]
