Author Archive

Reducing Pain and Effort in the Kitchen

Posted on July 14, 2012

EDSers are often frustrated with kitchen implements – they may be ineffective, difficult to use, or downright painful! Opening jars, bottles and cans are high on the list of complaints. Slicing, peeling, and cutting with knives is often painful. Lifting heavy pots, especially those with long handles, create torque on the wrist that makes it […]

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Side-Sleepers Need Knee Support

Posted on June 12, 2012

  Sometimes when I am in pain with EDS, I need to sleep on my side. In the past this has been very difficult because I toss and turn until I get the blanket correctly positioned between my knees.  This drives me nuts, and I end up moving around in bed to try to get comfortable. Most of […]

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What I use to Rest and Sleep

Posted on June 10, 2012

  Having EDS … it is often very difficult to get comfortable.  I find that this multi-postition back support system helps me rest and sleep. I can use it on the floor or in bed. I can position the wedges the way I want them and get support where I need it. This set is made up of three […]

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What Works Best – Heat or Cold?

Posted on June 8, 2012

With EDS, we all have those painful situations.  When I am in pain, I like to have options. One of the most effective, natural methods for relieving pain is a hot or cold pack.  Some packs are designed for heat, and others can be used for cold. The latest hot and cold therapy packs an be used for both. […]

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Knee Brace Comfort

Posted on June 7, 2012

Many EDSers are having problems with their knees.  We need that extra support, particularly when we are walking or standing for long periods.   It is important that we stabilize the knee joint properly.  Some EDSers need support all the time; others may need it only when they leave the home, take walks, travel or […]

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Do You Need Good Wrist Support?

Posted on June 5, 2012

Wrist instability is a very common problem for EDSers. I need support while I’m using my computer or driving long distances.  Stabilizing my wrist can prevent dislocations from lifting or carrying items.  Bracing reduces pressure on my wrist when I experience “torque” – a result of sideways or twisting movements.  Keeping my wrist in a straight and still […]

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The “Handshake” Mouse for EDSers

Posted on June 1, 2012

An ordinary horizontal mouse requires your forearm to twist away from its natural position. This can create more problems for unstable joints like mine. EDSers do better with a grip that is the same as an ordinary mouse, just turned sideways into a handshake position. I got used to the Handshake Mouse very quickly. This Vertical Mouse […]

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First International Symposium on Ehlers-Danlos Syndrome

Posted on May 21, 2012

This International symposium will focus on current progress and controversies in diagnosis, treatment and pathogenesis of Ehlers-Danlos syndrome. Experts will present the latest developments in the field, both of the clinical and molecular level.

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