Author Archive
Posted on February 10, 2022
Many Non-profit and for-profit organizations are considering creating or updating their website. We receive many promotions each day. As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider. Finding a reputable […]
Posted on January 28, 2022
The Funny Bone News Because with EDS, every bone is a funny bone. Hi everyone! I hope your new year started well! We skipped the January newsletter, because like almost every year, I was sick in bed over the holidays, and John & I have been working on some […]
Posted on January 17, 2022
Program review by Karina Sturm “Wow,” was the first word that came to my mind when I started to exercise with Jeannie Di Bon’s new program: The Zebra Club. My feelings regarding Jeannie’s new app were very similar to when I read Diana Jovin’s book Disjointed, which I recently reviewed as well. However, I wouldn’t be much of […]
Posted on December 2, 2021
December Ehlers-Danlos News
Posted on November 2, 2021
CLICK HERE to read
Posted on September 30, 2021
The Funny Bone News Because with EDS, every bone is a funny bone. Stronger Together ‘Positive Vibes to Keep Us Alive’ Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too… A typical story mine, wasn’t diagnosed ‘til twenty-five; […]
Posted on November 12, 2020
Now available at www.bodysupportstore.com — Zebra Shirts for awareness are only $10 each! This is the perfect way to communicate our EDS Awareness message during our May EDS Awareness month activities or the EDS conference in September!
Posted on August 24, 2020
New Feature-Length Ehlers-Danlos Documentary Fellow Zebras, medical professionals, and everyone living with an invisible condition, We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome Click here for the link to the […]
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