Author Archive

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Use caution when selecting a Website Design and Developer Services.    5 points to consider.

Posted on February 10, 2022

Many Non-profit and for-profit organizations are considering creating or updating their website.  We receive many promotions each day.  As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider.   Finding a reputable […]

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February Ehlers-Danlos News & Updates

Posted on January 28, 2022

        The Funny Bone News   Because with EDS, every bone is a funny bone.    Hi everyone!    I hope your new year started well!  We skipped the January newsletter, because like almost every year, I was sick in bed over the holidays, and John & I have been working on some […]

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Jeannie Di Bon’s Zebra Club

Posted on January 17, 2022

Program review by Karina Sturm “Wow,” was the first word that came to my mind when I started to exercise with Jeannie Di Bon’s new program: The Zebra Club. My feelings regarding Jeannie’s new app were very similar to when I read Diana Jovin’s book Disjointed, which I recently reviewed as well. However, I wouldn’t be much of […]

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October Ehlers-Danlos News & Updates

Posted on September 30, 2021

      The Funny Bone News   Because with EDS, every bone is a funny bone.    Stronger Together ‘Positive Vibes to Keep Us Alive’   Hi. How’s it going? My name is Sublime Roo; I’m a UK, Indie Music Producer and I’m an EDS sufferer too…  A typical story mine, wasn’t diagnosed ‘til twenty-five; […]

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EDS Awareness Shirts -– for Holiday Gifts – only $10 each!

Posted on November 12, 2020

Now available at www.bodysupportstore.com — Zebra Shirts for awareness are only $10 each! This is the perfect way to communicate our EDS Awareness message during our May EDS Awareness month activities or the EDS conference in September!

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New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ IS NOW ON LINE

Posted on August 24, 2020

  New Feature-Length Ehlers-Danlos Documentary   Fellow Zebras, medical professionals, and everyone living with an invisible condition,          We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome     Click here for the link to the […]

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