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Book Review: Holding It All Together When You’re Hypermobile
For our Chronic Pain Partners Post edition of November 2022, journalist Karina Sturm reviews author and fellow zebra Christie Cox’s new EDS book called Holding It All Together When You’re Hypermobile. In this article, we will provide more information on the book’s content and what distinguishes Cox’s book from other available Ehlers-Danlos Syndrome resources. […]
We Are Visible Too! Episode 1: Sarah Rightmire
We Are Visible (Too) is an ongoing mini-film series portraying people with EDS all across the globe. In this mini-documentary series, we will continue on the We Are Visible – a feature-length film about people with EDS – journey and add a variety of 5 – 10 minute videos of other people across the […]
Hypermobility Happy Hour Podcast interview with John Ferman
John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are […]
Book Review: “Fight + Flight” – The new middle-grade book featuring a character with EDS!
[CW: The book features an active shooter drill and talks about gun violence. This might be triggering to some people. The review is written so that an adult audience, as well as a younger audience, can get an impression of this book, but please keep in mind the potential triggers.] Chronic Pain Partners […]
April Torres on her EDS journey, the mental toll it took on her, and her book ‘God is Hilarious: My Rescue Story’
[CW: The following article discusses suicidal thoughts and ideation. This might be triggering for some people. If you or your loved one is experiencing an acute crisis, here are some phone numbers to consider in the US: The Lifeline (suicide & crisis line): 988 – The Trans Lifeline (trans peer support): 877-565-8860 – The Trevor […]
Suicide Prevention Month Q & A with Dr. Delaney and PA Sarah Cook about coping strategies and how to support people with chronic illnesses
[CW: The following article discusses suicidal thoughts and ideation. This might be triggering for some people. If you or your loved one is experiencing an acute crisis, here are some phone numbers to consider in the US: The Lifeline (suicide & crisis line): 988 – The Trans Lifeline (trans peer support): 877-565-8860 – The […]
Ehlers-Danlos Syndromes, gynecological complications & sexual health
[CW: The following article is for an adult audience due to its content and language. We are sharing challenges related to having sex and ways of overcoming those with concrete examples.] For our August newsletter, the Chronic Pain Partners media team brought together people from the EDS community and medical professionals to share […]
Archer Young about navigating health care as a trans man with EDS, transitioning, and studying with a disability
Archer Young For our August newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, writer Beth Miller speaks with Archer Young, a young trans man with EDS […]
