Author Archive

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New Feature-Length Ehlers-Danlos Documentary ’We Are Visible’ IS NOW ON LINE

Posted on August 24, 2020

  New Feature-Length Ehlers-Danlos Documentary   Fellow Zebras, medical professionals, and everyone living with an invisible condition,          We want to invite you to join the On Line screening of the film ‘We Are Visible’, a feature-length documentary about people living with Ehlers-Danlos syndrome     Click here for the link to the […]

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Cincinnati Children’s Hospital Connective Tissue Disorder Clinic Video

Posted on July 28, 2020

Cincinnati Children’s Hospital has a Connective Tissue Disorder Clinic helping children with Ehlers-Danlos Syndrome. This video celebrates the hospital’s impact on children and their families.

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May 2020 EDS Awareness Month

Posted on March 19, 2020

Every chronic illness and issue has an awareness month, and May happens to be the month for Ehlers-Danlos Syndromes Awareness. So prepare to promote with lots of awareness activities, articles and Facebook posts with your support group members, friends or family. If you don’t have a local group contact us to get one set up with […]

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Hypermobility Happy Hour Podcast interview with John Ferman

Posted on August 17, 2019

John Ferman President of Chronic Pain Partners 501 (c)(3) a.k.a. EDS Awareness was recently interviewed during a Hypermobility Happy Hour Podcast. John discusses the many EDS educational events and programs that the EDS Awareness team has conducted since 2011 and future plans for EDS patient, Physician CME and Nursing CEU Educational programs. Click here for […]

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Hypermobility Happy Hour Podcast with Dr. Linda Bluestein

Posted on July 27, 2019

A doctor and a lawyer walk into a podcast….   Meet Dr. Linda Bluestein and attorney Kerry Gabrielson, two professional women who managed to successfully complete many years of education despite having a painful genetic condition affecting their connective tissue that would need lifelong management.   Listen along to their podcast as they tackle the […]

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September 7 Kansas City Ehlers-Danlos Syndromes and Associated Conditions Seminar

Posted on June 8, 2019

Topics To Be Covered: Genetics, Cardiology, Gastroenterology, Dysautonomia, Mast Cell Activation Syndrome, Physical Therapy,  Occult Tethered Cord, Chronic Pain Management and Connecting the Dotsbetween Medical Complexities Provided By: EDSKC Collaboration Inc. in partnership withclinicians from Children’s Mercy Kansas City andthe University of Kansas Medical Center CLICK here for Program Brochure CLICK here for Physician Seminar […]

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2019 EDS Leadership Conference

Posted on May 18, 2019

We are delighted to have completed our first successful EDS Leadership event on May 17, 2019 in Mason, Ohio The conference was free, and we had over 300 life and “live stream” registered attendees from: US, AU, BE, Columbia, CA, UK, MX, Neatherlands, … Videos of the conference presentations will be posted on Leadeds.com soon. […]

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New Ehlers-Danlos Syndromes Physician CME Education Program

Posted on March 29, 2019

Introduced at the EDS Conference in Las Vegas About this program. We have had over 1200 participants since we introduced the program!  The Ehlers-Danlos Syndromes Physician CME Education Program is the first online Ehlers-Danlos Syndromes course accredited to provide continuing education credits. This free program will cover the fundamental principles for the diagnosis, classification, and […]

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