Author Archive
Posted on July 19, 2022
For our August newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, writer Beth Miller speaks with Cassandra Campbell, a coach, author and EDS advocate. Campbell shares […]
Posted on June 25, 2022
For Chronic Pain Partners, journalist Karina Sturm had the honor to speak with Dr. Russell “Chip” Norris from the Norris Lab at MUSC, a research laboratory dedicated to finding the genetic cause(s) for the hypermobile Ehlers-Danlos syndrome. Sturm speaks with Norris about their current research and how it will change care for people with […]
Posted on June 23, 2022
For our July newsletter, the Chronic Pain Partners media team interviewed a diverse group of people to highlight the diversity of our community and emphasize the challenges that arise when one belongs to more than one minority. In this interview, medical writer Sarah Cook, PA-C, speaks with Jack Briar Pollock, an EDS advocate and artist […]
Posted on June 23, 2022
For our July newsletter, the Chronic Pain Partner media team is excited to introduce the EDS community to the new middle-grade* fiction book “Fight + Flight,” which features a character with EDS! Journalist Karina Sturm had the pleasure to talk to author Jules Machias about their life with Ehlers-Danlos syndrome, their career as a writer, […]
Posted on June 23, 2022
For our July newsletter, journalist Karina Sturm spoke with Donna Sullivan, board member of The Coalition Against Pediatric Pain (TCAPP). Sullivan lives with EDS and has several affected children as well. In this interview, she shares with Chronic Pain Partners her decade-long experience working with families accused of child abuse due to a medically […]
Posted on June 22, 2022
For our July newsletter, the Chronic Pain Partners media team interviewed a group of people to highlight the diversity of our community and emphasize the challenges that arise when a person belongs to more than one minority. In this interview, journalist Jackie Saa speaks with Kaleena Deshawn, a Boston-based intermedia artist, makeup enthusiast, and zebra […]
Posted on February 10, 2022
Many Non-profit and for-profit organizations are considering creating or updating their website. We receive many promotions each day. As with all businesses there are good, OK and bad companies promoting their services. This article is intended to give you some general guidelines for selecting and managing a reliable Website Service Provider. Finding a reputable […]
Posted on January 28, 2022
The Funny Bone News Because with EDS, every bone is a funny bone. Hi everyone! I hope your new year started well! We skipped the January newsletter, because like almost every year, I was sick in bed over the holidays, and John & I have been working on some […]
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