Posts Tagged ‘education’

When Formal Education with Ehlers-Danlos Syndrome Isn’t Possible: 3 Tips

Posted on June 23, 2023

As discussed in the previous articles in this series, attending school with Ehlers-Danlos Syndrome (EDS) can be extremely difficult but possible with creative adaptations. Sometimes, however, accommodations aren’t enough, and formal education is impossible.  The United States has compulsory school attendance laws, which vary significantly by state, but all take the truancy of school-aged children […]

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How To Evaluate The Quality Of EDS Research Papers: A Conversation With Markus Bohn, PhD

Posted on April 30, 2023

Over the last few years, the Ehlers-Danlos syndromes have become more than just an afterthought for many researchers across the globe. However, with the growing number of academic papers published, it also got much harder for patients to evaluate the quality of those papers. Moreover, it’s incredibly challenging for people who aren’t scientists to tell […]

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4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome

Posted on March 1, 2023

Living with Ehlers-Danlos Syndrome (EDS) as a high school student can be especially challenging. The normal struggle of balancing academics, extracurriculars, and social life, all while trying to figure out who you are as a person, is overwhelming for most teenagers and is made more complicated when having to manage a chronic illness. Many times, […]

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