Dysautonomia

Illustrated cover image titled “Our Team’s Favorite Go-To Support Aids for EDS/HSD,” featuring sketches of a recumbent bike, shoulder brace, Thera Cane massage tool, SmartCRUTCH forearm crutch, and a McKenzie neck roll pillow arranged across a white background.

Up Close and Personal: Our Team’s Favorite Go-To Support Aids for EDS/HSD

This month, we wanted to give you a peek into the daily lives of our team members by asking them to share a few of their favorite go-to supportive items for Ehlers-Danlos syndromes (EDS) or hypermobility spectrum disorders (HSD). While these aids might be what work for us personally, we hope they offer inspiration and ideas to help you live your life to the fullest with EDS/HSD.

A black and white image of a small table near a wooden wall. The table is stacked haphazardly with books and papers.

Research Round-Up, Edition One

Welcome, pardner, to our new feature, Research Round-up! In each issue, we’ll bring you summaries of some of the latest EDS research to hit the medical journals. We’ll usually have five or so articles, but we’ve got a special edition this time—10 articles for your information and enjoyment! Yee-haw! Hitch up your horse, grab a […]

An illustration of a blue and purple nerve cell and a magnifying glass on yellow background. Text: New research on EDS, POTS & SFN. Small Fiber Neuropathy is a Common Feature in HEDS, Research Finds.

Small Fiber Neuropathy is a Common Feature in Hypermobile EDS, Research Finds

New research by a German group of scientists published in the European Journal of Neurology seeks to understand  if there is an underlying common cause among hypermobile EDS (hEDS), small fiber neuropathy (SFN), and postural orthostatic tachycardia syndrome (POTS). Their research sheds light on a possible common mechanism behind those three conditions.  SFN, POTS & […]