Archive for the ‘Support Groups’ Category

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EDS & Chiari “Unite@Night” Walks in Ohio

Posted on May 31, 2015

The May 30th Ehlers-Danlos / Chiari walk in Cincinnati, OH had an over whelming response! In addition to our group members, the walk attracted more than 75 new EDSers and families! Please join us in June for several walks throughout the country!

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UK Woman Spreads Awareness of Ehlers-Danlos Syndrome

Posted on December 6, 2014

Ruth Baker is telling her story to increase EDS Awareness in the UK.  She shares our passion – helping even one person makes it all worthwhile. Ruth says, “It can be a lonely place when you’re suffering from something that is so rare that even doctors don’t know what you’re talking about.” Doctors need to understand that EDS is perceived as a rare disorder only because […]

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May Is Ehlers Danlos Syndrome Awareness Month in Ireland

Posted on May 12, 2014

We are recognizing May as the world-wide EDS Awareness month.  “A new drive to raise awareness of Ehlers Danlos Syndrome (EDS) began this week and will run throughout May. A disorder of the connective tissue, EDS is a rare, lifelong, progressive disease that often goes undiagnosed, leaving sufferers desperate for answers. In Ireland, there is […]

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