Accessing consistent and compassionate care as a person with Ehlers-Danlos syndrome (EDS) and related conditions remains one of the biggest challenges in the healthcare system – no matter the country we live in. From delayed diagnoses to a lack of coordinated support, patients often find themselves piecing together care from multiple specialists—while simultaneously managing insurance, […]
Finding medical support – whether that is from a doctor, a physical therapist or other experts – when living with Ehlers-Danlos syndrome and comorbid conditions is incredibly challenging. Often, patients have to manage their care alone, coordinating appointments and communications between 10 – 15 specialties while paying six figure medical bills and trying to cope […]
Chronic Pain Partners is excited to speak with David Jameson Harris, a former McKinsey consultant, about his latest project, a new Ehlers-Danlos syndrome clinic, hopefully offering access to expert EDS care in several states starting in February 2024. CPP’s Karina Sturm spoke with David Jameson Harris about his new EDS clinic, his goals, and how […]
The Canadian Press Published Monday, February 27, 2017 The Ontario government said Monday that it was improving access to specialized care for people living with rare diseases. Health Minister Eric Hoskins announced the opening of a new clinic for people with Ehlers-Danlos Syndrome and the expansion of clinics for those with inherited metabolic disorders and […]