Support

Illustration of a young woman with straight, shoulder-length hair, looking slightly to the side with a calm expression. She wears a plain T-shirt and a green lanyard around her neck decorated with yellow sunflowers. This lanyard is the Hidden Disabilities Sunflower lanyard used to signal her invisible disability, EDS.

The Hidden Disabilities Sunflower Lanyard: Making the Invisible Visible

The Hidden Disabilities Sunflower lanyard can help patients with EDS signal to others that they may need extra understanding, support, or time in workplaces, shops, or other public spaces. 

A calculator on a piece of paper with lots of numbers

Bend, But Don’t Break the Bank: Financial Resources for EDS Patients

Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissue in the body. Chronic and rare disorders often lead to medical expenses that can overburden the patients’ wallets, deplete their savings, and sometimes result in debt or bankruptcy. Patients commonly experience financial challenges due to numerous medical expenses, including diagnostic tests, […]