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When Formal Education with Ehlers-Danlos Syndrome Isn’t Possible: 3 Tips

As discussed in the previous articles in this series, attending school with Ehlers-Danlos Syndrome (EDS) can be extremely difficult but possible with creative adaptations. Sometimes, however, accommodations aren’t enough, and formal education is impossible.  The United States has compulsory school attendance laws, which vary significantly by state, but all take the truancy of school-aged children […]

A picture of a young girl with brown hair and a pink tie in her hair sitting at a table writing.

Parental Preparation for Securing Accommodations at K-12 School for Children with the Ehlers-Danlos Syndromes

Please note: the author is based in the United States, so these are resources available in the US. Check with your school or local government education office or website for processes available in your country. The Individuals with Disabilities Education Act (IDEA) is the law in the United States that ensures every child in public […]

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4 Tips on How To Navigate School as a Student with Ehlers-Danlos Syndrome

Living with Ehlers-Danlos Syndrome (EDS) as a high school student can be especially challenging. The normal struggle of balancing academics, extracurriculars, and social life, all while trying to figure out who you are as a person, is overwhelming for most teenagers and is made more complicated when having to manage a chronic illness. Many times, […]