Chronic Illness

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Spoonie & Chronic Illness Podcasts

Our Chronic Pain Partners’ Team is collecting their favorite books, podcasts and films on EDS and its comorbid condition in a series of listicles you will find on our website over the next months. We have shared our favorite books in our special newsletter issue in May for EDS Awareness Month, as well as EDS […]

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Bend, But Don’t Break the Bank: Financial Resources for EDS Patients

Ehlers-Danlos Syndrome (EDS) is a group of genetic disorders that affect the connective tissue in the body. Chronic and rare disorders often lead to medical expenses that can overburden the patients’ wallets, deplete their savings, and sometimes result in debt or bankruptcy. Patients commonly experience financial challenges due to numerous medical expenses, including diagnostic tests, […]